The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts on behalf of sarcoma patients.
• Funding translational research grants that will lead to new sarcoma therapies
• Advocating for increased government funding against sarcoma
• Creating alliances with the biotechnology and pharmaceutical industries to rapidly
develop new and better sarcoma treatments
• Increasing public awareness regarding early detection of sarcoma
• Educating sarcoma patients regarding access to optimal sarcoma care
• Advocating for early access by sarcoma patients to promising agents developed for other cancer types
The Sarcoma Foundation of America (SFA) was founded by Dr. Mark Thornton, Mrs. Patricia Thornton, and Dr. John Brooks (pictured above left), and incorporated in Maryland in 2000. The SFA received 501(c)(3) designation from the United States Internal Revenue Service on June 18, 2001. This designation allows all contributions to SFA to be tax deductible.
On July 4, 2001, there was a “Call for Founders.” The period from July 4, 2001, until July 3, 2002, was the Founding Period for the Foundation, and members joining during this period were considered Founding Members. Current active Founding Members of the SFA are Gary and Addie Tomei (pictured above right) of New York City. In 2003, the Tomeis also began the tradition of the Annual SFA Gala, which is the SFA’s largest yearly fundraiser.
Since these humble origins, the SFA has attracted thousands of members in all 50 states. With your dedicated support the SFA has supported 57 sarcoma research grants since 2003, along with two large American Society of Clinical Oncology (ASCO) Foundation Clinical Research grants worth $450,000. The SFA has also funded six ASCO Young Investigator Awards and has started a large research based initiative called the Sarcoma Patient Registry, designed to increase research performed on sarcoma and to facilitate clinical trials.
The Sarcoma Foundation of America is a national organization with SFA Chapters. Learn how you can get involved in your local SFA Chapter. Because the primary purpose of the SFA is to increase the focus and attention on sarcoma research, there is an emphasis on fundraising for research grants and advocacy activities. However, SFA Chapters also serve to support the sarcoma community through communications and activities for sarcoma patients and their families.
SFA is managed by a Board of Directors who are elected for a two–year term. Additional Board Members can be added at any time following a nomination and a vote from the membership. SFA is also advised by a stellar group of medical professionals who serve on our Medical Advisory Board. The Medical Advisory Board reviews and approves all recipients of SFA research grants.
Information on sarcoma subtypes, treatments, clinical trials, and other important resources for sarcoma patients and families.
Information on the Sarcoma Patient Registry. If you are diagnosed with sarcoma, please consider joining the Registry.
Information on applying for a sarcoma research grant, current research funded by the SFA, and past research grants.