Calendar of Events

February 2012
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Fundraisers

5k Run/Walk for a Sarcoma Cure

Oct 21, 2012 • Florida

The 5th Annual 5k Run/Walk for a Sarcoma Cure will be held on October 21, 2012 at Central Park, Plantation, FL. 

More information will be announced soon. 

If you would like to volunteer, please contact Mike Mandell at .(JavaScript must be enabled to view this email address) or Amy Kropp at .(JavaScript must be enabled to view this email address).



2nd Annual Pittsburgh Cure Sarcoma 5k Run/Walk

Jul 14, 2012 • Pennsylvania

The 2nd Annual Pittsburgh Cure Sarcoma 5k Run/Walk will be held on July 14, 2012 at North Park - Boathouse.

For more information, please contact
Bill Suit at .(JavaScript must be enabled to view this email address) or
Carl Firetto at .(JavaScript must be enabled to view this email address)



Ronny Gras Event

Jun 29, 2012 • Illinois

image Come Fight Cancer at Ronny Gras Event!

7pm - Midnight

115 Bourbon Street
3359 115th Street
Merrionette Park, IL

Open Bar, Food, Raffle, Silent Auction, Live Music, and More!

Tickets = $50 Click here to purchase tickets and/or donate to the event

If you have any questions, please contact us at .(JavaScript must be enabled to view this email address).

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More about Ron Giampaolo


In honor of our dad, Ron Giampaolo, and on behalf of everyone who has been touched by cancer we are proud to bring you Ronny Gras! A Mardi Gras themed fundraiser with 100% of the proceeds going to the Sarcoma Foundation of America. Join us on 6-29-12 at 115 Bourbon Street for an open bar, food, a live performance by The Lady Upstairs, raffles, a silent auction and much more. Please click on the link above to purchase your tickets now. If you would like to make a donation to our silent auction/raffle please contact us by email at .(JavaScript must be enabled to view this email address). FIGHT LIKE HELL!
-- The Giampaolo family


Bud’s Run 5K, A Celebration of Life

Jun 23, 2012 • Illinois

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The 9th Annual Bud’s Run is eagerly being planned.  Bud’s Run is a 5K Run/Walk that remembers and honors Bud Swanson and those that have “moved on” as a result of sarcoma.  Bud loved to run and to race and he loved coaching runners.  Bud’s Run is a joyous gathering of runners, friends of runners, and those who understand that life is precious and deserves celebration every day.

For more information, please visit http://www.budsrun.org

9th Annual Bassett Golf Classic

Jun 12, 2012 • Connecticut

Each year Bassett Furniture gathers its network together for a day of golf with family and friends to raise funds to support an important cause in their community. Bassett believes in giving back and this year’s event supports a cause that is near and dear to their hearts, sarcoma cancer research.

This year, the 9th annual tournament will be at Wallingford Country Club on Tuesday, June 12, 2012. The tournament will include lunch at 11:00 and a shotgun start at 12:30, with dinner, open bar, raffle, and an auction.



2012 Annual Gala and Educational Conference

Apr 29, 2012 • New York

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For more information on the Gala and Educational Conference, please CLICK HERE

Loving you each day! Remembering you on Valentines Day!

Feb 14, 2012 • Nationwide

The Sarcoma Foundation of America invites you to join our Loving you each day! Remembering you on Valentine’s Day! tribute. Share a photo of your Valentine in honor or in memory of their life and love. The photo of your Valentine will be highlighted in a slideshow presentation on the SFA web site and SFA Facebook page from Valentine’s Day through February 29th (sample presentation below). All photos received by February 12 will be on our website for Valentine’s Day! Photos will be added weekly.

SFA is committed daily to finding the cure for sarcoma in our lifetime by advocating for increased research to find new and better therapies with which to treat patients with sarcoma. You can support increased research to find the cure for sarcoma by including a tax-deductible donation with your Valentine’s photo.

Step 1: CLICK HERE to make your donation (optional).
Step 2: Email the photo of your loved one with name to .(JavaScript must be enabled to view this email address). By submitting your photo, you are agreeing to the following:
For valuable consideration received, I hereby grant to the Sarcoma Foundation of America, Inc. and his/her legal representatives and assigns, the irrevocable and unrestricted right to use and publish photographs of me, or in which I may be included, for editorial, trade, advertising and any other purpose and in any manner and medium; to alter the same without restriction; and to copyright the same. I hereby release Sarcoma Foundation of America, Inc. and his/her legal representatives and assigns from all claims and liability relating to said photographs.

♥ ♥ Happy Valentine’s Day from the Sarcoma Foundation of America! ♥ ♥



Sample Presentation:



Michele OCallaghan Memorial

Jan 17, 2012 • New York

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Michéle O’Callaghan, 48, had lived in Pleasantville, New York for the last 17 years with her husband Tommy and their three children: Julia, age 14; TJ, age 11; and Mia, age 8.  Born on September 14, 1963, her childhood was spent in Manhattan where she went to St. Joseph Academy grammar school and then to high school at Notre Dame Academy.  In 1985 she graduated from Susquehanna University in Pennsylvania.  An interest she had developed in theatre led her to follow a study of Theatre Arts both in the United States and in England.  Michéle went on to be one of the most well-known and popular makeup artists in the entertainment industry.  Highlights of Michéle’s career include being nominated for a Daytime Emmy for her work on Another World and traveling the world working Olympics games for NBC.  Michele’s career spanned all corners of the entertainment world;  The Today Show, Saturday Night Live, Later with Bob Costas, Inside the Actors Studio, The Maury Povich Show and The Late show with David Letterman, both at NBC and CBS, are just a few of the shows that she worked as a proud member of the staff.

While working at NBC, Michéle was introduced to her future husband, Tommy Togneri.  The couple and their children always enjoyed spending time both in Pleasantville and Candlewood Lake, Connecticut. The lake community that Michéle had enjoyed since childhood provided some of their happiest moments and was the site of their wedding in 1995.  Michéle was an avid athlete who water skied, jogged and took kick boxing classes so when her leg began to bother her in February of 2010, she thought it was a sports related injury.  She would learn that it was a rare form of cancer called Soft Tissue Sarcoma.  Michéle battled this horrible disease the same way she did everything in life, with a positive energy that inspired those around her.  Michéle was a unique spirit that worked with some of the most famous people on the planet. Presidents, star athletes, and the biggest names in Hollywood all knew and respected Michéle.  Her loss has been felt deeply throughout the entertainment industry.  When the disease finally compromised her lungs this past December, Michéle passed away on December 16, 2011.  If you wish to read more about this remarkable woman, please CLICK HERE.  Also please view the three on air tributes that were given about Michéle by Bob Costas, Keith Olberman and David Letterman:  Click to watch videos.

You can make a donation online in Michéle’s name, which will help fund new sarcoma research, by clicking the DONATE HERE button below.  If you would prefer to mail your gift instead, please CLICK HERE to print a form that can be completed and mailed with your gift.



Ron Giampaolo Memorial

Jan 16, 2012 • Illinois

image Ron Giampaolo was born January 29, 1944 to Elmer and Mary (Birsa) Giampaolo in Joliet, Illinois. After graduating high school and enlisting in the army, he worked as a heavy machinery mechanic. Ron loved cars and engines of all kinds. Among the many kinds of cars Ron owned and restored are MG convertibles, classic cars, and he even owned and raced midget race cars on the UARA circuit.

Ron married Joann Doyle, a teacher, on August 3, 1968. They have five children: Betsy (Brian) Dobczyk, Jeff (Gwen), Julie (Dave Daugherty), Jill (Brandon) Brenczewski and Mike (Erin). They also have twelve grandchildren: Caitlin, Emily, Casey, and Brett Dobczyk; Sophia and Maddie Giampaolo; Cameron, Gabby and Addie Daugherty; and Olivia, Alaina and Lila Brenczewski.

Fifteen months ago, Ron was diagnosed with soft tissue sarcoma of the left leg. He went through radiation and several surgeries and was cancer-free for several months. The cancer spread to his lungs in summer 2011, and after courageously undergoing many more treatments to slow the progression of his disease, Ron was finally at peace on January 16, 2012. Ron's beloved wife Joann was constantly by his side and gave him unwavering love and support throughout. As Ron battled this aggressive cancer, he did so with dignity, humor and incredible strength.

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To honor Ron's fighting spirit, his family is planning a silent auction and fundraising event called Ronny Gras, with 100% of the proceeds going to The Sarcoma Foundation to fund research on this rare and aggressive form of cancer.


Sarah Chidgey Hughes Fund

Jan 01, 2012 • Texas

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Sarah Chidgey Hughes, or “Miss Chidgey” as she was known to her beloved students, was a devoted Spring Branch ISD teacher at Meadow Wood Elementary School in Houston, TX. Sarah was also a proud University of Texas and ZTA alum. She bravely fought Sarcoma from about March 2010 until February 2011.

The SFA Texas Chapter will be working over the next year to raise money to reach our goal of starting a Sarcoma research grant in Sarah’s name. To do this, we must raise $50,000 in just over a year. A lofty goal, but one that I believe we can achieve with your support.

If you were lucky enough to have known or met Sarah, you know that she was a very special young lady who touched hearts and inspired many.  Through her beautiful blog, she was able to continue her passion, teaching. She taught so many of us about love, about life, about passion, and about hope.

If you would like to learn more about sweet, wonderful Sarah, she documented her life and fight with cancer on an amazing blog: 

http://www.sarahchidgey.blogspot.com 

The story she tells is powerful. It is honest, uplifting, tearful, devastating, and inspiring all at the same time. I suggest you read her blog from the beginning. You won’t be disappointed. Help us raise money to reach our goal in honoring Sarah, and help find a cure for Sarcoma in our time!

Shine Bright Firefly, Shine Bright!



Adventures of Snooky, Under the Sea book

Jan 01, 2012 • Nationwide

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Click here to purchase a signed copy of the book

Adventures of Snooky, Under the Sea is the first 2-D hologram children’s book in the world! Combining holograms with loveable characters, morals, and a rhyming story, this eye-catching book is ready to sparkle its way into the hearts of young children.

This book is dedicated to Brian J. Monaghan—brother, son, husband and father of five children. He passed away at age 34 from Leiomyosarcoma and Condrosarcoma, two rare cancers. Brian invented and patented a hologram system that created the holograms in this book. Proceeds from the book will go to the Sarcoma Foundation of America in Brian’s memory. We will always miss his spirit. He was brave, unselfish, and generous, just like our hero, Snooky.



A Gift in Our Time

Dec 24, 2011 • Nationwide

For 10 years the Sarcoma Foundation of America has been committed to battling sarcoma by funding medical research, educating patients, and advocating for government reform. Throughout this first decade we have grown from a grassroots organization to a national foundation that has dedicated nearly $3 million toward sarcoma research, enabling crucial discoveries that are leading to new treatments.

The SFA has also developed the national Sarcoma Patient Registry as a research tool for epidemiological and drug development studies and funds career development programs to foster young scientists interested in gaining knowledge about this disease. Additionally, the SFA has been the voice of all Americans with rare cancers to engage the government to adopt policies that will foster new drug development for neglected cancers like sarcoma.

Unfortunately, despite this progress, much more has to be done to find a cure for all sarcomas.

Supporters like you have given us the focus and drive to build the Sarcoma Foundation of America into a true voice for sarcoma patients. With your help and generous spirit, the next 10 years will forge a path for more awareness, research, and new therapies for sarcomas.

In this season of giving, we are writing to ask for your further support in finding the cure in our time by donating to our end-of-year program, “A Gift in Our Time.” Your generous gift of $50, $100, $200, $500 or more will help in the search for a cure. There are a variety of ways that you can donate such as check, credit card, stock gifts, planned gifts, and matching gifts from participating employers.

Giving is a choice, fighting for a cause is a belief, and your support is a must!

Thank you in advance for your continued support!



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Programs & Resources

Patient Resources Patient Resources

Information on sarcoma subtypes, treatments, clinical trials, and other important resources for sarcoma patients and families.

Patient Registry Sarcoma Patient Registry

Information on the Sarcoma Patient Registry. If you are diagnosed with sarcoma, please consider joining the Registry.

Research Grants Research Grants

Information on applying for a sarcoma research grant, current research funded by the SFA, and past research grants.

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