Patient Registry Program

Thank you for your interest in the Sarcoma Patient Registry Program.  The Registry records the significant events of the history and treatment of patients diagnosed with Sarcoma.  The Registry is a data collection and reporting system hosted by Registry Partners and managed by SFA

The Registry’s endeavor is to collect, store, analyze and interpret data on persons with sarcoma.  We invite you to participate in our efforts to make the Sarcoma Patient Registry information as accurate and comprehensive as possible.  By contributing, your data will be a valuable resource for oncologist and researchers conducting clinical trials and medical studies.  Most of all, you will be helping to improve the care of current and future sarcoma patients.

You are eligible to join the Registry if you have been diagnosed with ANY sarcoma subtype.

If you have any questions or would like to join the Sarcoma Patient Registry, please send an email to .(JavaScript must be enabled to view this email address) with your contact information and the most convenient time and method to contact you, or you can call toll free at (866) 501-6780.

Download the Sarcoma Patient Registry Brochure Here

SFA Patient Registry Supported By

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Programs & Resources

Patient Resources Patient Resources

Information on sarcoma subtypes, treatments, clinical trials, and other important resources for sarcoma patients and families.

Patient Registry Sarcoma Patient Registry

Information on the Sarcoma Patient Registry. If you are diagnosed with sarcoma, please consider joining the Registry.

Research Grants Research Grants

Information on applying for a sarcoma research grant, current research funded by the SFA, and past research grants.