Patient Resources

Sarcoma Information Links

Sarcoma Patient Organizations and Sarcoma Research Foundations

“Team Russo: Assaulting the Green Monster to Beat Cancer” - Sarcoma Fundraiser
Northwest (U.S.) Sarcoma Foundation
The Liddy Shriver Sarcoma Initiative
The Sarcoma Alliance
GIST Support International
Amschwand Sarcoma Cancer Foundation
Karen Wyckoff Rein in Sarcoma Foundation
Kristen Ann Carr Foundation
Sarcoma UK
Association of Cancer Online Resources (ACOR has general and specific sarcoma groups and provides the ability to communicate directly with other patients.)
The Shelby Richter Fund
The National Organization Against Rare Cancers
The Life Raft Group
Sarcoma Alliance for Research through Collaboration
The Hope Fund for Sarcoma Research

Other Sarcoma Patient-Oriented Sites

Dr. Demetri’s site - George Demetri, MD, Director of the Center for Sarcoma and Bone Oncology, provides an easy-to-follow introduction to the complexities of sarcoma definition, research, and treatment. 

Coping with surgical disfigurement is a website created by a man who explains how he has successfully coped with disfiguring surgery secondary to his bout with cancer.

Providers of Free Air Transportation For Medical Needs:
    Cancer Air Flights
    Corporate Angel Network
    National Patient Travel Center

I Can Do This:  Living with Cancer, Tracing a Year of Hope tells the story of the past year and a half of the author’s life, after she was diagnosed with 4th stage, metastasized, leiomyosarcoma.

Medical Organizations That are Totally or Partly Dedicated to Sarcoma

Connective Tissue Oncology Society
American College of Surgeons Oncology Group
Children’s Oncology Group
American Society for Clinical Oncology
The Children’s Cause

Vital Options International is a not-for-profit cancer communications, advocacy and support organization, based in Los Angeles, that helps produce “The Group Room”, a weekly two-hour live radio call-in talk show about cancer.

Expanded Access Information

The Abigail Alliance for Better Access to Developmental Drugs
Cancer Action Now - Expanded Access Organization

Programs & Resources