Posts Tagged ‘Race to Cure Sarcoma’

Patient & Caregiver Engagement Opportunity: Synovial Sarcoma

The Sarcoma Foundation of America (SFA) partners with sarcoma researchers and industry to collaborate on ways to find more and better therapies for sarcoma patients. SFA does this to ensure that the voices of patients, survivors, caregivers, and sarcoma advocates are represented in research and therapy development. We believe that incorporating perspectives of patients and caregivers positively impacts and improves the overall drug development process. SFA is currently working with a pharmaceutical company on a project in synovial sarcoma. In order to fully understand the patient journey, and to increase understanding and develop treatments and resources for people living with…  Read More »

SFA Celebrates 20 Years of Sarcoma Research and Advocacy

The Sarcoma Foundation of America Celebrates 20 Years of Sarcoma Research and Advocacy As the Sarcoma Foundation of America (SFA) celebrates our 20 year anniversary, we reflect not only on what we have accomplished, but also on what we envision for the future. Twenty years ago, SFA was founded to fill an unmet need – to fund and advocate for more sarcoma research and to encourage the development of new and better therapies for sarcoma patients. Looking back at these past 20 years, we see the impact of our work. Sarcoma is no longer being left behind, we have harnessed…  Read More »

Join Us for Our 20th Anniversary Celebration

Join the Sarcoma Foundation of America on August 10 for our 20th Anniversary!    Your support has made our work possible, so we want you to be a part of celebrating 20 years of funding vital sarcoma research, spreading awareness, and educating sarcoma patients and others. We invite you to join us virtually on August 10, 2020, to look back on all of the wonderful achievements of the Sarcoma Foundation of America and help us look ahead to an even bigger impact in the future.   Follow our Facebook event page on August 10 to be a part of this special virtual…  Read More »

Sarcoma Awareness Month Social Media Toolkit

Sarcoma Awareness Month Social Media Toolkit During July, the sarcoma community unites together for Sarcoma Awareness Month to bring more attention to the needs of sarcoma patients, survivors, and their families.  Though the Sarcoma Foundation of America (SFA) works tirelessly every day to raise awareness, during Sarcoma Awareness Month we aim to further highlight the need for more sarcoma research and better sarcoma therapies. Please join us in our efforts to raise more awareness! One way to raise sarcoma awareness is by spreading the word through social media.  Social media can be a powerful tool to share your story and…  Read More »

We Need You for the National Race to Cure Sarcoma Virtual Event

    In celebration of Sarcoma Awareness Month, the Sarcoma Foundation of America invites you to join us for the National Race to Cure Sarcoma Virtual event on July 25, 2020. July is an important month for the sarcoma community because it is a time dedicated to those who have been touched by sarcoma. Although we are miles apart, we are connected through our common goal to find a cure for this disease. Join us as we virtually gather together to raise much needed awareness and research dollars in support of sarcoma patients and survivors and ultimately an end to…  Read More »

Race to Cure Sarcoma Needs You Now More Than Ever

  The Race to Cure Sarcoma needs you now more than ever!   The current COVID-19 situation has caused events all over the country to be rescheduled or canceled. At the Sarcoma Foundation of America (SFA), the safety of sarcoma patients and RTCS participants are our top priority.   SFA is closely following federal government and individual state reopening plans and SFA is taking these plans into consideration as we make decisions to reschedule events or change to virtual events.   We know we must continue our goal of supporting research that leads to life saving treatments for sarcoma patients…  Read More »

Advocate Profile: Brittany Symonds

  “I refuse to let cancer win. Cancer will not determine how I live.” -Brittany Symonds   A sarcoma diagnosis can have a life changing impact on the lives of those in our communities, but one of our advocates and Race to Cure Sarcoma Tampa participants is showing us that we do not have to let this diagnosis take away from us what we love in life.    Brittany Symonds was diagnosed in summer of 2015 with leiomyosarcoma in her leg after she was injured when playing softball. This led to more than 11 surgeries, radiation, multiple scans, and having to face the…  Read More »

Meet the Doctor – Kenneth Cardona, MD, FACS

Kenneth Cardona, MD, FACS, Associate Professor of Surgery, Winship Cancer Institute at Emory University Race to Cure Sarcoma™ Atlanta   What inspired you to specialize in sarcoma? The rarity and complexity of this disease in combination with our limited treatment options outside of surgical therapy inspired me to focus my advanced surgical training in surgical oncology on this unique disease. What is the focus of the research performed in your lab? I am the lead and principal investigator of the Unites States Sarcoma Collaborative, which is a multi-institutional research effort amongst 8 academic institutions across the US studying this rare…  Read More »

The Race to Cure Sarcoma is Bigger & Better in 2018

Excitement for the 2018 Race to Cure Sarcoma™ season is building as we head into what will no doubt be our biggest and best year yet!  The Race to Cure Sarcoma™ remains the premier run/walk series in the United States focused on raising awareness and research funds for sarcoma.    Organized by the Sarcoma Foundation of America (SFA), the Race to Cure Sarcoma™ is made up of family-friendly 5K run/walks held in cities across the nation. Last year, nearly 3,500 people participated in the Race to Cure Sarcoma™.    What makes the 2018 Race to Cure Sarcoma™ so exciting?    …  Read More »

2017 Year in Review

We are nearing the end of the first month of 2018 and the sarcoma Foundation of America (SFA) is grateful for everything that you’ve done in 2017. Your work makes a difference in the lives of sarcoma patients and their families While we can’t wait to see what the rest of 2018 will bring, we first want to take a moment to look back on the previous year. Thanks to your support and generosity, the Sarcoma Foundation of America had an exceptional 2017!  In 2017, your gifts: Funded more than three quarters of a million dollars in sarcoma research.  …  Read More »

Racing Toward a Cure for Sarcoma

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   In the three years that I have been with the Sarcoma Foundation of America, I have had the privilege of serving the sarcoma community. An important part of my job as CEO is to meet patients, caregivers and loved ones, learn about their patient journeys, and try to understand the challenges that each and every sarcoma patient deals with on their path to becoming a sarcoma survivor. I have also worked closely with sarcoma doctors and researchers, learning about their efforts to…  Read More »

2016 – A Year of Hope and Progress

Dear Sarcoma Foundation of America Supporter, As the calendar takes us into the holiday season, we take the time to reflect on the year that has passed.  In the sarcoma community, 2016 has been a year of hope and progress.  Two new sarcoma drugs have been approved, one drug for Leiomyosarcoma and Liposarcoma patients and another approved broadly for Soft Tissue Sarcoma patients.  These new therapeutic options give us continued hope for better patient outcomes and represent the progress that sarcoma researchers have made over the last decade. The type of hope and progress that the sarcoma community experienced in…  Read More »

A Note of Thanks

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. In honor of Thanksgiving, I would like to take a moment to share my heartfelt thoughts of gratitude. I know that I speak for all of the staff at the Sarcoma Foundation of America with this list of thanks. Our work to find the cure in our time is inspired by the sarcoma community and is accomplished thanks to the help we receive from those who share the same goal of improving the lives of those touched by sarcoma. Thank you to… The…  Read More »

Denver City Council President Albus Brooks to Serve as Chair for the Inaugural RTCS Denver

— 5K Event to Raise Awareness and Funds for Sarcoma Research — DAMASCUS, Md. – August 19, 2016— Sarcoma survivor and Denver City Council President Albus Brooks will serve as the Chairperson of the inaugural Race to Cure Sarcoma Denver.  The charity 5K run/walk will benefit the Sarcoma Foundation of America (SFA) and the University of Colorado Cancer Center. Brooks was diagnosed in July with Chondrosarcoma, a subtype of sarcoma.  Sarcoma is a rare cancer of bone and soft tissue.  It is rather rare in adults, comprising only 1 percent of all adult cancers, but accounts for 15 percent of…  Read More »

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