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Posts Tagged ‘sarcoma foundation of america’

Working and Learning at the SFA

Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day.  Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA…. Read More

Racing Toward a Cure for Sarcoma

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   In the three years that I have been with the Sarcoma Foundation of America, I have had the privilege of serving the sarcoma community. An important part of my job as CEO… Read More

A Celebration of Life

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Each year, the Sarcoma Foundation of America holds its annual gala, “A Celebration of Life,” in New York City to raise money to support our sarcoma research efforts.  This evening serves as… Read More

My Sarcoma Story – Joey

Note: Joey’s story was shared by his mother, Linda. Joey’s Story: My son Joey, was diagnosed with osteosarcoma in February 2009. A large tumor in his knee proved to be malignant. I had never heard of this disease and was sure that whatever it was, he could beat it. We began… Read More

Rare Disease Day 2017

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Two years ago, I wrote a blog post in honor of Rare Disease Day.  Entitled, “Shedding Light on the Forgotten Cancer,” it was a piece meant to raise awareness for a little… Read More

My Sarcoma Story – Kimberly

  Kimberly’s Story: June 20, 2016. This was the day that I first heard the word Sarcoma. It was 3 am, and I woke up to get a glass of water and saw an email on my phone from Quest – the results of my biopsy. I opened it, thinking it… Read More

My Sarcoma Story – Evan

  Note: Evan’s story was shared by his wife, Felicia. Evan’s Story: My husband Evan and I are parents to two young children, a 1-year-old daughter and a 5-year-old son. After experiencing some intermittent pain in his left ankle, in December 2015 Evan got an MRI which revealed a mass in his… Read More

A Window of Hope

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   There was a long period of time where there seemed to be little to no progress in finding ways to battle the forgotten cancer known as sarcoma. This period of time lasted… Read More

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