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SFA Spotlights National Childhood Cancer Awareness Month

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Throughout September, SFA will recognize National Childhood Cancer Awareness month, providing educational content about pediatric sarcoma and meaningful activities in which our supporters can participate to help build awareness about the disease. During the recognition month, SFA will take to social media with posts about childhood sarcoma. In addition, to help you show your support to finding a cure for pediatric sarcoma, we have developed a series of graphics for you to use on your social media accounts. Download graphics below. On September 18, we will hold our Wear Gold Day in recognition of the month. The 18th day of…  Read More »

Action Alert: Childhood Cancer STAR Act

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  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Take Action: Childhood Cancer STAR Act

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  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »

Childhood Cancer Action Days

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CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

Childhood Cancer Awareness Month

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  Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers?   September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings.  But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments.   You can help change that!  Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9…  Read More »

Register Now – Childhood Cancer Action Days

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REGISTER TODAY!! CHILDHOOD CANCER ACTION DAYS WASHINGTON, DC JUNE 15-16, 2015   The Sarcoma Foundation of America, a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Days in Washington, DC, are scheduled for June 15-16, 2015. Once again, organizational members of the Alliance for Childhood Cancer will host a two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The Alliance’s goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives…  Read More »

Donnie Sills’ Pie Challenge for Sarcoma and Childhood Cancers

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Inspired by the ALS ice bucket challenge, SFA friend and supporter Donnie Sills came up with a fun idea to bring more awareness and funding to sarcoma and childhood cancers. Donnie, who lost his wife last year to rhabdomyosarcoma, is a tireless advocate for sarcoma patients and their families.  He knows first-hand how little funding goes towards sarcoma and childhood cancer research and he wants to do something about it.   You can learn more about Donnie’s Pie Challenge here. Take his Pie Challenge and encourage others to do the same. Check out some of the people who have taken Donnie up on his challenge….  Read More »

Faces of Childhood Cancer Project

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Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.  There is still time to register.  Please visit the…  Read More »

Childhood Cancer Awareness – Serena’s Story

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In honor of Childhood Cancer Awareness month, SFA would like to share the story of one family’s battle with pediatric sarcoma.  Serena is a 16-year-old who was diagnosed with Ewing’s Sarcoma at age 12.  This past August 14 marked the 4th anniversary of her diagnosis.  On that day, Serena’s mom, Lynn, updated the “Team Serena” Facebook page with a post sharing her thoughts on how sarcoma has changed their lives forever.  Here is their story in her own words: I wanted to share with you what’s on my mind today, is where we were four years ago. We went to…  Read More »

A Moonshot to Cure Cancer Fact Sheet

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The White House today released a fact sheet outlining the focus of the newly formed Cancer Moonshot Task Force. Highlights of the new initiative include support for funding increases for cancer-related activities at the National Institutes of Health and the Food and Drug Administration, as well as a focus on activities such as pursuing genomic analysis of tumors and efforts to discover immunotherapies and combination therapies. Please make your voice heard during this process.  Share your story and how you have been impacted by sarcoma with the Vice President and the Cancer Moonshot Task Force.      THE WHITE HOUSE…  Read More »

SFA’s 2nd Annual Last Mile Research Grant Opportunity Now Accepting Applications

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The Sarcoma Foundation of America (SFA) announced today it has begun accepting proposals for its Last Mile Research Grant. In its second year, the research funding opportunity provides one-year grants of $150,000, to support translational science research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. Completed applications must be submitted by April 3, 2023, at 5:00 pm EDT. This grant mechanism is available for sarcoma researchers to provide funding to strengthen the resubmission of a National Cancer Institute (NCI) NCI R01 proposal where the member is the project director and principal investigator on the application. The…  Read More »

New York Jets’ John Franklin-Myers Is Named SFA’s Awareness Ambassador

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Damascus, Md. December 8, 2022 – The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, announced today that New York Jets’ John Franklin-Myers will serve as SFA Awareness Ambassador. Franklin-Myers has a personal connection to the sarcoma community. The defensive end supports SFA in memory of his grandfather Billy Ray-Myers who died of sarcoma in 2011. Franklin-Myers’ past support of SFA includes his participation in the National Football League’s My Cause, My Cleats program during which he had a pair of custom cleats designed to reflect his support of SFA and auctioned them…  Read More »

SFA Accepting 2023 Research Grant Proposals

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, is now accepting proposals for pre-clinical, translational, and clinical research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. The deadline for submissions is 5:00 p.m., ET, on February 1, 2023. The SFA grants are awarded on an annual cycle from June 1 to May 31. For each awarded grant, funding of up to $50,000 in total cost is available to cover equipment, supplies and other expenses in support of research within the period of performance. This request for proposals is…  Read More »

Technoblade To Be Honored by SFA with Courage Award at New York Gala

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that online gamer and influencer Technoblade will be recognized with the SFA Courage Award. The award presentation will be made to Technoblade’s family during SFA’s Stand up to Sarcoma Gala on September 28, 2022, in New York, NY. The SFA Courage Award honors patients who have demonstrated strength and perseverance in their sarcoma diagnosis. Technoblade, real name: Alexander, was an American YouTuber and internet personality known for his YouTube channel, Technoblade, a Minecraft persona in the guise of a pig that he…  Read More »

New York Jets’ John Franklin-Myers Seeks Team Members for Race to Cure Sarcoma New Jersey

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New York Jets’ John Franklin-Myers is inviting individuals to join his team, JFM 91.0 QB Hits, supporting the Sarcoma Foundation of America’s (SFA’s) Race to Cure Sarcoma New Jersey on October 2, 2022. The event is a 5K Run or a 1-mile Fun Run/Walk to be held at the South Mountain Reservation in West Orange, NJ. SFA is an organization dedicated to increasing research and awareness for sarcoma. The first 25 persons to join Franklin-Myers’ team and attend the race will receive a special team t-shirt. The defensive end supports SFA in memory of his grandfather Billy Ray-Myers who died…  Read More »

SFA Honors Adaptimmune Therapeutics with 2022 Vision of Hope Award

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Adaptimmune Therapeutics (Adaptimmune) has been selected to receive the 2022 Vision of Hope Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. Stand Up to Sarcoma is SFA’s flagship fundraising event, featuring extraordinary honorees, tributes to sarcoma cancer survivors and advocates, and recognizing important advances in science and research. The SFA Vision of Hope Award is presented to a person or organization whose public or private actions have resulted in the advancement of care,…  Read More »

SFA to Present 2022 Amira Yunis Courage Award to Todd Barron at New York Gala

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Todd Baron will be the recipient of the 2022 SFA Amira Yunis Courage Award. The award presentation will be made during SFA’s Stand up to Sarcoma Gala on September 28, 2022, in New York, NY. The Amira Yunis Courage Award honors patients who have demonstrated strength and perseverance in their sarcoma diagnosis. Todd Barron, a financial advisor and father of two daughters, was diagnosed with Ewing’s sarcoma in February 2018. Since his initial diagnosis, he has undergone two major surgical resections…  Read More »

SFA Honors Johns Hopkins’ Devon Ciampa, LCSW-C, OSW-C, with 2022 Compassionate Care Award

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Devon Ciampa, LCSW-C, OSW-C, will receive the Compassionate Care Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. The SFA Compassionate Care Award is given annually to recognize a patient/nurse navigator (clinical/nurse, community health worker, social worker in the role of a navigator) for his or her outstanding contributions to patient care, support or education. Ciampa was nominated by the family of Officer Spencer Butler Wiersberg. The family stated, “Devon understood the unique struggles…  Read More »

SFA Accepting Applications for Funding into Human Sarcoma Translational Research

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The Sarcoma Foundation of America (SFA) is pleased to announce a research funding opportunity to provide one-year grants of $150,000, to support translational science research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. Completed applications must be submitted by October 1, 2022, at 5:00 pm ET. This grant mechanism is available for sarcoma researchers to provide funding to strengthen the resubmission of a National Cancer Institute (NCI) NCI R01 proposal where the member is the project director and principal investigator on the application. The R01 must have scored in the 30th percentile or better, but outside…  Read More »

SFA Honors Stanford University Researcher Crystal L. Mackall, MD, with 2022 Nobility in Science Award

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Crystal L. Mackall, MD, will receive the Nobility in Science Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. The Nobility in Science Award is given annually to a deserving, visionary sarcoma surgeon and researcher who has taken on an integral role in advancing drug development for sarcoma patients. Awardees receiving this honor have contributed in a significant way to the advancement of science, care and treatment for sarcoma patients. Dr. Mackall is the…  Read More »

SFA Partners with Jordan’s Dream Fund to Assist Sarcoma Patients with Out‐of‐Pocket Clinical Trial Expenses

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that it has launched the Jordan’s Dream Fund for Clinical Trials to help cover out-of-pocket expenses for sarcoma patients participating in clinical trials. There is no fund like it in the sarcoma community. This program will provide assistance with direct expenses related to transportation (airfare, gas, rental cars, etc.), lodging and some medical expenses not covered by insurance and necessary for clinical trial treatment. Grants up to $5,000 will be awarded four times each year in September, November, February and May. Adjusted gross…  Read More »

Sarcoma Foundation of America announces 2022 Research Grant Awards

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The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that it has awarded close to $1 million in research funds to deserving scientists as part and of its 2022 SFA Research Grant Program. Nineteen research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a cancer that arises in the body’s soft tissue and bone. Grants were funded in seven different countries: United States, United Kingdom, Italy, Canada, Switzerland, Germany, and the Netherlands. All proposals are peer reviewed by members of the…  Read More »

NFL SAN FRANCISCO 49ER TRENT WILLIAMS TO SERVE AS AMBASSADOR FOR SARCOMA FOUNDATION OF AMERICA

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      — Williams to receive organization’s Courage Award at virtual ceremony September 28 — WASHINGTON, D.C.; SEPTEMBER 27, 2021 — The Sarcoma Foundation of America announced today that San Francisco 49ers offensive tackle Trent Williams will receive the organization’s 2021 Courage Award as well as serve as a Sarcoma Foundation Ambassador. In this role, the organization looks forward to Trent discussing his own experience with sarcoma — including surgery to remove the tumor from the soft tissues near his brain — as well as his recovery and return to NFL football. “Sarcoma is the rarest and most underfunded…  Read More »

Uncover principles underlying cryoablation-induced immunotherapy effects in sarcomas

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Malignant sarcomas comprise 12% of all pediatric cancers. Despite its rare occurrence, sarcomas are life threatening and difficult to treat, and nearly half of all patients will have recurrence and metastasis.  The two most prevalent sarcomas in the pediatric and adolescent population are Osteosarcoma and Rhabdomyosarcoma (RMS). Osteosarcoma (OS) is the most prevalent malignant bone cancer with a high propensity for lung metastasis in children and adolescent and young adults (AYA), with ~400-600 cases a year in the United States. Despite aggressive chemotherapy and surgery, the outcome for unresectable pulmonary metastatic or recurrent/refractory OS remains poor over the past 4…  Read More »

Dissecting the contribution of germline genetics to pediatric sarcoma pathogenesis

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Amongst pediatric cancers, bone and soft tissue sarcomas are often associated with the poorest prognoses and most limited effective treatment options. Understanding the genetics that predispose to the development of childhood cancers generally, and sarcomas specifically, is critical to discover novel mediators of oncogenesis, better screen children at-risk, and enable earlier diagnoses that could make cure more achievable. Prior research has suggested that while 7-10% of all pediatric cancers arise in part due to pathogenic germline variants in cancer predisposition genes, this rate may be >20% in many sarcomas. Existing work has largely focused on the role of germline single…  Read More »