2020: What A Year!

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2020: What A Year!

By Brandi Felser, Executive Director In January of this year I wrote a blog post reflecting on my first days at the Sarcoma Foundation of America (SFA) engaging with the sarcoma community. I wrote at the time about the impression the advocates made on me as I heard the stories they shared at the December 2019 FDA Oncologic Drugs Advisory Committee meeting. I wrote then: As someone personally affected by cancer and a seasoned cancer advocate, I am no stranger to the needs of cancer patients, survivors, and caregivers.  But seeing them stand before a committee of oncologists and FDA…  Read More »

Potential new treatment for soft tissue sarcoma

The FDA recently granted orphan drug status to CPI-613 (devimistat) for the treatment of soft tissue sarcoma. The maker, Rafael Pharmaceuticals, launched a phase 1/2 clinical for patients with relapsed/refractory soft tissue sarcoma. Read more about it here    

SFA 2021 Research Grant Cycle is Now Open

The Sarcoma Foundation of America (SFA) is pleased to announce a research funding opportunity to provide one-year grants in the amount of $50,000, to support translational science research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas.    Grant awards for the 2021 cycle will be made on June 1, 2021.   Click here for details and guidelines        

Help Cure Sarcoma on #GivingTuesdayNow

The heart of the Sarcoma Foundation of America is research and donors like you have made SFA the leading research and sarcoma patient advocacy organization in the country. Join SFA for the GivingTuesdayNow Global Campaign Around the end of November each year, people all over the world come together and donate for GivingTuesday.  We are always awestruck by the sense of community created when millions of people collectively support charitable organizations on a single day. GivingTuesdayNow is a new global effort being held on May 5 to promote charitable organizations and their need for support during these uncertain times. SFA is…  Read More »

2017 Artwork Contest Winners

The results of our 2017 Children’s Sarcoma Artwork Contest are in and it’s a tie! Congratulations to both Alli and Ellie, 11-year-old twins. They created their pieces in memory of their beloved brother, Brice. Brice passed away from Epithelioid Sarcoma. Alli’s artwork will be featured on the SFA’s 2017 holiday card. Ellie’s work will be used for new SFA note cards. Both Alli and Ellie’s artwork is now featured in our SFA shop!  Visit http://www.cafepress.com/curesarcoma and click on the “Children’s Artwork” tab to see the newest merchandise with Alli and Ellie’s designs. Thank you again to everyone who submitted their art. All…  Read More »

Tweet chat on drug development

Sarcoma medical oncologist Laurence H. Baker, DO (@LaurenceBaker2), will answer your questions on drug development during a 45-minute tweet chat on Thursday, September 24, at 9 pm (EST). Dr. Baker is a professor of internal medicine and pharmacology at the University of Michigan Medical School in Ann Arbor. He has served as director for clinical research and hematology/oncology at UM’s Comprehensive Cancer Center; chairman of the Southwest Oncology Group, the largest clinical trials organization in the United States; executive director of the Sarcoma Alliance for Research through Collaboration, a national cooperative group that runs sarcoma clinical trials; and president of the…  Read More »

American Income Life Supports Sarcoma Foundation

American Income Life Supports Sarcoma Foundation Donations will help fund research and education POMPANO BEACH, FL SEPTEMBER 11, 2015 — American Income Life Insurance Company, headquartered in Waco, TX, in partnership with State General Agents Tom Williams and David Zophin, donated $10,000 to the Sarcoma Foundation of America (South Florida Chapter) as part of the Company’s Closer to the Heart program of charitable giving. Tom Williams, State General Agent of the Williams-Zophin Agency, representing American Income Life in the south Florida region, presented the donation to Bert Thomas, CEO of Sarcoma Foundation of America at Williams-Zophin’s main office in Pompano…  Read More »

SARC partners with SFA and QuadW in support of clinical trial of anti-PD1 agent

DEC. 22, 2014 – ANN ARBOR, MICH. – Focused on their mission to identify new treatments for sarcoma, an uncommon cancer, SARC has leveraged a generous donation to secure the support of the Sarcoma Foundation of America (SFA) and the What Would Willie Want Foundation (QuadW) in a collaborative effort to support a new multi-institutional clinical trial of an anti-PD1 agent. The company who is providing their drug and support for the study of soft tissue sarcoma agreed to provide their drug to study bone sarcomas if additional funding could be secured. SARC secured generous commitments from the Sarcoma Foundation…  Read More »

Life — The Adventure

By guest blogger, Jamie Schou In January 2012, after experiencing some soreness in my ribs, I went to my chiropractor for an adjustment.  He was working on my back when he noticed a large mass.  After an unsuccessful surgery at a local hospital – the surgeon thought the mass was a Lipoma – and lots of searching, in March of 2012 we found an orthopedic surgeon who determined the mass was a Synovial Sarcoma.   I went down the usual path – chemo, radiation and surgery.  The sugery was a 16 hour ordeal.  The tumor was deep in my muscle,…  Read More »

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