Author Archive

SFA Accepting 2023 Research Grant Proposals

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, is now accepting proposals for pre-clinical, translational, and clinical research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. The deadline for submissions is 5:00 p.m., ET, on February 1, 2023. The SFA grants are awarded on an annual cycle from June 1 to May 31. For each awarded grant, funding of up to $50,000 in total cost is available to cover equipment, supplies and other expenses in support of research within the period of performance. This request for proposals is…  Read More »

The Last Mile Sarcoma Research Award – Deadline Extended

The Last Mile Sarcoma Research Award SFA is pleased to announce that our grant application deadline for the Last Mile Sarcoma Research Award has been extended until November 1st. Overview The Sarcoma Foundation of America (SFA) is pleased to announce a research funding opportunity to provide one-year grants in the amount of $150,000, to support translational science research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. In support of our overall mission to fund research and increase awareness and advocacy for sarcoma patients and their families, the goal of the SFA grant program is to encourage…  Read More »

Technoblade To Be Honored by SFA with Courage Award at New York Gala

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that online gamer and influencer Technoblade will be recognized with the SFA Courage Award. The award presentation will be made to Technoblade’s family during SFA’s Stand up to Sarcoma Gala on September 28, 2022, in New York, NY. The SFA Courage Award honors patients who have demonstrated strength and perseverance in their sarcoma diagnosis. Technoblade, real name: Alexander, was an American YouTuber and internet personality known for his YouTube channel, Technoblade, a Minecraft persona in the guise of a pig that he…  Read More »

New York Jets’ John Franklin-Myers Seeks Team Members for Race to Cure Sarcoma New Jersey

New York Jets’ John Franklin-Myers is inviting individuals to join his team, JFM 91.0 QB Hits, supporting the Sarcoma Foundation of America’s (SFA’s) Race to Cure Sarcoma New Jersey on October 2, 2022. The event is a 5K Run or a 1-mile Fun Run/Walk to be held at the South Mountain Reservation in West Orange, NJ. SFA is an organization dedicated to increasing research and awareness for sarcoma. The first 25 persons to join Franklin-Myers’ team and attend the race will receive a special team t-shirt. The defensive end supports SFA in memory of his grandfather Billy Ray-Myers who died…  Read More »

SFA Honors Adaptimmune Therapeutics with 2022 Vision of Hope Award

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Adaptimmune Therapeutics (Adaptimmune) has been selected to receive the 2022 Vision of Hope Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. Stand Up to Sarcoma is SFA’s flagship fundraising event, featuring extraordinary honorees, tributes to sarcoma cancer survivors and advocates, and recognizing important advances in science and research. The SFA Vision of Hope Award is presented to a person or organization whose public or private actions have resulted in the advancement of care,…  Read More »

SFA to Present 2022 Amira Yunis Courage Award to Todd Barron at New York Gala

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Todd Baron will be the recipient of the 2022 SFA Amira Yunis Courage Award. The award presentation will be made during SFA’s Stand up to Sarcoma Gala on September 28, 2022, in New York, NY. The Amira Yunis Courage Award honors patients who have demonstrated strength and perseverance in their sarcoma diagnosis. Todd Barron, a financial advisor and father of two daughters, was diagnosed with Ewing’s sarcoma in February 2018. Since his initial diagnosis, he has undergone two major surgical resections…  Read More »

SFA Honors Johns Hopkins’ Devon Ciampa, LCSW-C, OSW-C, with 2022 Compassionate Care Award

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Devon Ciampa, LCSW-C, OSW-C, will receive the Compassionate Care Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. The SFA Compassionate Care Award is given annually to recognize a patient/nurse navigator (clinical/nurse, community health worker, social worker in the role of a navigator) for his or her outstanding contributions to patient care, support or education. Ciampa was nominated by the family of Officer Spencer Butler Wiersberg. The family stated, “Devon understood the unique struggles…  Read More »

SFA Accepting Applications for Funding into Human Sarcoma Translational Research

The Sarcoma Foundation of America (SFA) is pleased to announce a research funding opportunity to provide one-year grants of $150,000, to support translational science research on the etiology, molecular biology, pathogenesis, diagnosis, and treatment of human sarcomas. Completed applications must be submitted by October 1, 2022, at 5:00 pm ET. This grant mechanism is available for sarcoma researchers to provide funding to strengthen the resubmission of a National Cancer Institute (NCI) NCI R01 proposal where the member is the project director and principal investigator on the application. The R01 must have scored in the 30th percentile or better, but outside…  Read More »

SFA Honors Stanford University Researcher Crystal L. Mackall, MD, with 2022 Nobility in Science Award

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that Crystal L. Mackall, MD, will receive the Nobility in Science Award during SFA’s Stand Up to Sarcoma Gala on September 28, 2022, in New York, NY. The Nobility in Science Award is given annually to a deserving, visionary sarcoma surgeon and researcher who has taken on an integral role in advancing drug development for sarcoma patients. Awardees receiving this honor have contributed in a significant way to the advancement of science, care and treatment for sarcoma patients. Dr. Mackall is the…  Read More »

SFA Partners with Jordan’s Dream Fund to Assist Sarcoma Patients with Out‐of‐Pocket Clinical Trial Expenses

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that it has launched the Jordan’s Dream Fund for Clinical Trials to help cover out-of-pocket expenses for sarcoma patients participating in clinical trials. There is no fund like it in the sarcoma community. This program will provide assistance with direct expenses related to transportation (airfare, gas, rental cars, etc.), lodging and some medical expenses not covered by insurance and necessary for clinical trial treatment. Grants up to $5,000 will be awarded four times each year in September, November, February and May. Adjusted gross…  Read More »

Sarcoma Foundation of America announces 2022 Research Grant Awards

The Sarcoma Foundation of America (SFA), an organization dedicated to increasing research and awareness for sarcoma, today announced that it has awarded close to $1 million in research funds to deserving scientists as part and of its 2022 SFA Research Grant Program. Nineteen research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a cancer that arises in the body’s soft tissue and bone. Grants were funded in seven different countries: United States, United Kingdom, Italy, Canada, Switzerland, Germany, and the Netherlands. All proposals are peer reviewed by members of the…  Read More »

Technoblade Tribute

We are deeply saddened by the loss of Technoblade.  His generosity and selflessness were evident when he was able to rally his fans and followers to raise over $500,000 for SFA to date. Reading the many tributes left to him online we know he was beloved by his millions of fans and followers. We are overwhelmed by their outpouring of love, support, and generosity and want to thank everyone who made donations in his honor. If you would still like to donate, we ask that you use this page to make your gift. We will honor Technoblade, now known to…  Read More »

Immunotherapy Advances in Sarcoma webinar

Live virtual session held on May 20, 2022, discussing immunotherapeutic advances in the treatment of sarcoma with Drs. Evan Rosenbaum, Seth Pollack, Brian Van Tine, and Breelyn Wilky. Areas discussed include a background on immunotherapy in oncology, the current role of immunotherapy in sarcoma.   Watch the recording here      

Genomics in Sarcoma discussion

Live virtual session discussing genomic testing in sarcoma treatment. Areas to be discussed include a background on genomic testing, current state of genomic testing for accurate diagnosis and identifying treatment options, and a discussion of if, and how, genomic testing may help with treatment in the future.   If you missed the live session, you can watch the recording here.      

Sarcoma Awareness and the National Football League

SFA and sarcoma awareness were recognized during the December 5 National Football League My Cause My Cleats campaign. Through this campaign, players have the opportunity to pick a cause that is important to them and represent their chosen organization on custom designed cleats.  SFA thanks John Franklin-Myers, New York Jets, Tim Patrick, Denver Broncos, and Trent Williams, San Francisco 49ers for using their platform and their personal sarcoma connection to shine a light on the sarcoma community.   

Sarcoma Research Grant Program opens on November 1, 2021

The next round of grant funding is opening November 1.  SFA is the largest private funder of research in the sarcoma community and these grants are important to advancing new therapies for sarcoma patients.   Thank you to everyone who has donated to this grant program or participated in our Race to Cure Sarcoma events.  It is because of you that we are able to support sarcoma research and patients.   Learn More Now    

NFL SAN FRANCISCO 49ER TRENT WILLIAMS TO SERVE AS AMBASSADOR FOR SARCOMA FOUNDATION OF AMERICA

      — Williams to receive organization’s Courage Award at virtual ceremony September 28 — WASHINGTON, D.C.; SEPTEMBER 27, 2021 — The Sarcoma Foundation of America announced today that San Francisco 49ers offensive tackle Trent Williams will receive the organization’s 2021 Courage Award as well as serve as a Sarcoma Foundation Ambassador. In this role, the organization looks forward to Trent discussing his own experience with sarcoma — including surgery to remove the tumor from the soft tissues near his brain — as well as his recovery and return to NFL football. “Sarcoma is the rarest and most underfunded…  Read More »

Virtual Advocacy Day

By Brandi Felser, CEO Advocating on behalf of those impacted by sarcoma has been a core principle of the Sarcoma Foundation of America’s mission since the organization was founded in 2001.  The SFA continues to be actively engaged in the public policy arena, urging legislators and regulators to place a high priority on rare cancer research, drug development, and access to quality patient care. We are also actively engaged in coalitions like the Alliance for Childhood Cancer, the Cancer Leadership Council, One Voice Against Cancer and many others where we actively engage in advocacy letters to Members, action items and…  Read More »

We want to hear from you!

SFA would like to hear from you! What are the greatest needs in the sarcoma community and what should the priorities be for 2021: more education; increased information about clinical trials; greater opportunity to come together for advocacy? Let us know by completing this survey: https://www.surveymonkey.com/r/TRHQPVM

Prioritizing COVID-19 Vaccines for Cancer Patients

SFA joined a broad spectrum of organizations representing laboratory, translational, and clinical researchers; other health care professionals; patients with cancer; and patient advocates in sending a letter to the Biden administration and other public health officials that highlights the importance of prioritizing patients with active cancer and survivors of cancer when administering COVID-19 vaccines.   http://bit.ly/2OEkvVW

4-Star Charity Navigator Rating

SFA is proud to have once again received a 4-star rating on Charity Navigator – its highest score. Their ratings help donors make informed giving decisions and enable well-run charities to demonstrate their commitment to proper stewardship of contributions.    

Brendan’s Story

It has been over 2,000 days since a doctor told my wife Melissa she had synovial sarcoma.  It has been over 1,400 days since her fight ended and my life and our kids’ lives changed in a way I never thought would happen. Melissa inspired me to live life large! To fight like hell for others and most importantly, to make a difference in our lives and to show the boys that we help others- no matter what our struggles are, someone else’s is always greater! Senator Johnson first met Melissa and I on February 28, 2017.  He gave us…  Read More »

Helpful Tips for Caregivers

A sarcoma diagnosis doesn’t only affect the patient, but also close friends and family members. Here are some helpful tips for those caring for sarcoma patients.

2020: What A Year!

By Brandi Felser, Executive Director In January of this year I wrote a blog post reflecting on my first days at the Sarcoma Foundation of America (SFA) engaging with the sarcoma community. I wrote at the time about the impression the advocates made on me as I heard the stories they shared at the December 2019 FDA Oncologic Drugs Advisory Committee meeting. I wrote then: As someone personally affected by cancer and a seasoned cancer advocate, I am no stranger to the needs of cancer patients, survivors, and caregivers.  But seeing them stand before a committee of oncologists and FDA…  Read More »

Potential new treatment for soft tissue sarcoma

The FDA recently granted orphan drug status to CPI-613 (devimistat) for the treatment of soft tissue sarcoma. The maker, Rafael Pharmaceuticals, launched a phase 1/2 clinical for patients with relapsed/refractory soft tissue sarcoma. Read more about it here