Author Archive

Study Opportunity – Share What Matters Most to People with Cancer

If you have ever received a sarcoma diagnosis, our colleagues at The Cancer Support Community need your help. Read their message below to learn how you can share your thoughts on what matters most to those living with cancer. Subject: Help us understand what matters most to people with cancer! The Cancer Support Community (CSC) is looking for people to help develop a new tool to understand what matters most to people living with cancer. Please consider participating if you have ever received a cancer diagnosis, are at least 18 years old, and can read English. Participants who complete the survey…  Read More »

Sarcoma Foundation of America Announces 2019 Research Grant Awards

DAMASCUS, Md. – June 27, 2019 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased research and awareness for sarcoma, today announced that it has awarded three quarters of a million dollars in research funds to deserving scientists as part of its 2019 SFA Research Grant program. Fifteen research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the grants to the…  Read More »

Volunteer Profile: Thomas Rank

By Thomas Rank, Guest Contributor Why do I ride? On a warm day in the summer of 2015, I arrived at my first cross country practice. The team always met at the local park shelter before practice where the summer breeze would often compliment the harmonious symphony of chatter and laughter between teammates. Suddenly, the talking would cease and our coach, who in his own right is a great man and leader, would begin his speech about the daily agenda. While listening, I couldn’t help but notice Ben Harmon have a smile across his face. He raised his hand and…  Read More »

Find Support and Share Experiences Through Sarcoma Connect

  The Sarcoma Foundation of America is excited to announce that we have partnered with Inspire to bring a new online support community to sarcoma patients, survivors, and caregivers.  Sarcoma Connect provides a secure space where those impacted by sarcoma can anonymously chat, share experiences, ask questions, and receive support from those who understand what they are going through.  We invite you to join the discussion and connect with others at inspire.com/groups/sarcomaconnect/.   

Sarcoma Foundation of America Announces New Grant Awards for Uterine Leiomyosarcoma Research

DAMASCUS, Md. – November 1, 2018 – The Sarcoma Foundation of America (SFA), the leading organization dedicated to increased research and awareness for sarcoma, today announced two research grants awarded to projects focused on the study of uterine leiomyosarcoma.  Uterine leiomyosarcoma is a rare subtype of sarcoma, a cancer that occurs in soft tissue and bone. Made possible by the generosity of the Dr. Richard and Valerie Aronsohn Memorial Fund, these awards support investigative efforts by leading sarcoma researchers at Memorial Sloan-Kettering Cancer Center and Stanford University. These research projects are eligible for renewal, potentially bringing the SFA’s overall investment…  Read More »

Teens Coordinate Concert Series to Raise Money for Sarcoma Research and Awareness

By Elizabeth Brown, Guest Contributor   My name is Elizabeth Brown and I am 14 years old. I have a twin brother named Matthew. Our good friend and classmate was recently diagnosed with rhabdomyosarcoma, and we wanted to show our support by doing something that would benefit him and all people fighting sarcoma. We knew that we could make a difference through our talents of music. I play classical guitar, violin, and sing, and Matthew plays piano and organ. Together, we organized the St. Mark Young Artists Concert series to benefit the Sarcoma Foundation of America. We performed a variety…  Read More »

Epithelioid Sarcoma Infographic

For Sarcoma Awareness Month, Epizyme has developed an infographic to spread awareness for epithelioid sarcoma. Click here to download the infographic in its entirety.               

Sarcoma Foundation of America Announces 2018 Research Grant Awards

DAMASCUS, Md. – May 10, 2018 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased research and awareness for sarcoma, today announced that it has awarded half a million dollars in research funds to deserving scientists as part of its 2018 SFA Research Grant program.  Ten research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the grants to the best, most…  Read More »

Meet the Doctor – Kenneth Cardona, MD, FACS

Kenneth Cardona, MD, FACS, Associate Professor of Surgery, Winship Cancer Institute at Emory University Race to Cure Sarcoma™ Atlanta   What inspired you to specialize in sarcoma? The rarity and complexity of this disease in combination with our limited treatment options outside of surgical therapy inspired me to focus my advanced surgical training in surgical oncology on this unique disease. What is the focus of the research performed in your lab? I am the lead and principal investigator of the Unites States Sarcoma Collaborative, which is a multi-institutional research effort amongst 8 academic institutions across the US studying this rare…  Read More »

Sarcoma Foundation of America to Present Dr. James Wittig with the Nobility in Science Award

DAMASCUS, Md. – March 1, 2018 – The Sarcoma Foundation of America (SFA) today announced that renown orthopedic surgeon James C. Wittig, MD, is the 2018 recipient of the organization’s prestigious Nobility in Science Award. Dr. Wittig is being recognized for his contributions to sarcoma cancer research, treatment, education, and advocacy during a ceremony at the SFA’s 16th Annual fundraising event, Stand Up to Sarcoma, on Thursday, May 3, 2018, at Guastavino’s in Manhattan. The Nobility in Science Award is given to an outstanding scientist who is dedicated to the advancement of knowledge of sarcoma and works tirelessly to find new…  Read More »

The Race to Cure Sarcoma is Bigger & Better in 2018

Excitement for the 2018 Race to Cure Sarcoma™ season is building as we head into what will no doubt be our biggest and best year yet!  The Race to Cure Sarcoma™ remains the premier run/walk series in the United States focused on raising awareness and research funds for sarcoma.    Organized by the Sarcoma Foundation of America (SFA), the Race to Cure Sarcoma™ is made up of family-friendly 5K run/walks held in cities across the nation. Last year, nearly 3,500 people participated in the Race to Cure Sarcoma™.    What makes the 2018 Race to Cure Sarcoma™ so exciting?    …  Read More »

2017 Year in Review

We are nearing the end of the first month of 2018 and the sarcoma Foundation of America (SFA) is grateful for everything that you’ve done in 2017. Your work makes a difference in the lives of sarcoma patients and their families While we can’t wait to see what the rest of 2018 will bring, we first want to take a moment to look back on the previous year. Thanks to your support and generosity, the Sarcoma Foundation of America had an exceptional 2017!  In 2017, your gifts: Funded more than three quarters of a million dollars in sarcoma research.  …  Read More »

Meet the Researcher – William K. Decker, PhD

William K. Decker, PhD, Associate Professor, Baylor College of Medicine   2016 Pittsburgh Cure Sarcoma Co-Founder Carl Firetto Memorial Research Award : “Outbred Canine Model of Adjuvant Immunotherapy for Angiosarcoma”   PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. We study the basic immunobiology of dendritic cells and the manner by which this critical cell subtype orchestrates TH polarization. TH polarization sounds complicated – and it is – but can be explained relatively easily. The adaptive immune system makes two main types of fundamentally different immune responses. One of these responses, termed TH2, is aimed at eliminating pathogens that…  Read More »

Action Alert: Childhood Cancer STAR Act

  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Bring Hope to Sarcoma Warriors This Holiday Season

Dear Friend of the Sarcoma Foundation of America, What do the Holidays Mean to you? “Sarcomas are bad, bad, actors.” The doctor’s solemn warning still echoes in my head and reverberates through my whole body this time of year… nearly 20 years after he uttered the words. The holiday season can bring excitement and anticipation as well as fond memories of frenzied shopping trips, festive parties, and spending time with loved ones. But for me, sketchy images from a raw, colorless day in November of 1998 also flash through my mind. “Your son has a rare aggressive cancer called alveolar…  Read More »

Teen Comedy Contest for the #CureSarcoma Cause

 Today’s post was written by Sara Jade Alan, a sarcoma survivor and author. On the evening of November 17, at Smoky Hill High School, Colorado’s first-ever Teen Comedy Contest was held. In a cafeteria transformed by talented teen techies into a theater space complete with stage lighting, over fifty students from six high school improv troupes around the Denver metro area gathered together. They brought their energy, excitement, and chops for making-stuff-up-on-the-spot, all to benefit a great cause…and to compete for improv glory. With troupe names like the Flustered Mustards (Heritage HS), Method to Madness (Cherokee Trail HS), Regular Irregulars (East…  Read More »

The Healing Power of Comedy

 Today’s post was written by Sara Jade Alan, a sarcoma survivor and author.   In 2005, I was in my twenties and living and performing comedy in New York City. I had just completed an eight-month yoga-teacher training program when I discovered a lump on my outer left thigh. I thought it would be nothing, but I went to see an orthopedic doctor about it to make sure. He coolly told me: tumor. I remember walking out of his office onto the blustery NYC street, the giant X-ray envelope whipping around in my hands like a sail—as if to warn, the…  Read More »

Meet the Researcher – Andrew Koff, PhD

Andrew Koff, PhD, Member and Professor, Sloan Kettering Institute, Memorial Sloan Kettering Cancer Center   2014 Heidi Connery Memorial Research Grant: “Proteomic and genomic approaches to understanding intrinsic and acquired resistance to CDK4 inhibition therapy in well differentiated/dedifferentiated liposarcoma”   PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. The laboratory of cell cycle regulation at Memorial Sloan Kettering Cancer Center is interested in identifying the genes and proteins that regulate the transition of cells from quiescence, a reversible type of proliferative exit, to senescence, a more stable irreversible type of proliferative exit.  Proliferation associated with a deregulated cell cycle…  Read More »

Participation in a Market Research Study on Soft Tissue Sarcoma

M3 a market research company, is looking for people who have been diagnosed with Soft Tissue Sarcoma for an in person or webcam/telephone interview. Participants will be helping the company in the development of new treatments and to understand how to best serve patients. A short telephone conversation will confirm whether or not you qualify. You will be compensated for your time. If you live in the LA or Chicago areas, M3 would like to speak with you in person. If you are outside of these areas, it will be a webcam/telephone interview. If you are interested in participating, please contact…  Read More »

Sarcoma Foundation of Announces 2017 Research Grants

  DAMASCUS, Md. – May 24, 2017 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased awareness and research for sarcoma, today announced that it has awarded $500,000 in research funds to deserving scientists at institutions across the United States as part of its 2017 SFA Research Grant program. Ten research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a rare cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the…  Read More »

It’s Been a Privilege

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. This is my last week at the Sarcoma Foundation of America (SFA). Over the last three years it has been my privilege to serve the sarcoma patient community through my role at the SFA. I have meet so many amazing patients, caregivers, doctors and researchers in that time. I have been moved by the challenges that each face, the perseverance that they demonstrate in their individual and collective efforts to achieve better patient outcomes, and the hope and optimism that the sarcoma community…  Read More »

Working and Learning at the SFA

Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day.  Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA.  Last year, she wrote a blog about how kids can help in our efforts to raise money for sarcoma research.  She has once again chosen to serve as a guest blogger during her time in the office.   By Caleigh   Have you ever wondered about the Sarcoma Foundation of…  Read More »

Racing Toward a Cure for Sarcoma

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   In the three years that I have been with the Sarcoma Foundation of America, I have had the privilege of serving the sarcoma community. An important part of my job as CEO is to meet patients, caregivers and loved ones, learn about their patient journeys, and try to understand the challenges that each and every sarcoma patient deals with on their path to becoming a sarcoma survivor. I have also worked closely with sarcoma doctors and researchers, learning about their efforts to…  Read More »

Sarcoma Foundation of America to Honor Lilly Oncology for Advancements in the Treatment of Soft Tissue Sarcoma

– Vision of Hope Award to be presented at the SFA’s 15th Annual Fundraising Gala –   DAMASCUS, Md. – April 10, 2017– The Sarcoma Foundation of America (SFA), an organization dedicated to increased research funding and advocacy for sarcoma, is pleased to announce that Lilly Oncology is the 2017 recipient of the Vision of Hope Award.  Lilly Oncology will be honored at the SFA’s 15th Annual New York fundraising gala, “A Celebration of Life.”  The event will take place on April 20, 2017, at Guastavino’s, 409 E 59th Street, New York, NY. The Vision of Hope Award is presented…  Read More »

Sarcoma Foundation of America Endorses Dr. Scott Gottlieb for FDA Commissioner

In a letter to the Chairman and Ranking Member of the United States Senate Committee on Health, Education, Labor and Pensions (HELP), the Sarcoma Foundation of America (SFA) expressed support for the nomination of Scott Gottlieb, MD, for Commissioner of the Food and Drug Administration.  In the letter, the SFA urged for the conformation of Dr. Gotlieb, writing that “Dr. Gottleib has an exemplary track record of supporting and spearheading efforts to ensure that safe and effective treatments are moved through the review process in an expedient manner. During his tenure as the Deputy Commissioner for Medical and Scientific Affairs at…  Read More »