SFA Recent News

Advocate Profile: Brittany Symonds

  “I refuse to let cancer win. Cancer will not determine how I live.” -Brittany Symonds   A sarcoma diagnosis can have a life changing impact on the lives of those in our communities, but one of our advocates and Race to Cure Sarcoma Tampa participants is showing us that we do not have to let this diagnosis take away from us what we love in life.    Brittany Symonds was diagnosed in summer of 2015 with leiomyosarcoma in her leg after she was injured when playing softball. This led to more than 11 surgeries, radiation, multiple scans, and having to face the…  Read More »

SFA Joins Other Cancer Organizations on Pandemic Response Letters

The Sarcoma Foundation of America joined more than 50 other cancer organizations on letters to Congress and Department of Health and Human Services Secretary Alex Azar calling on legislators and the Administration to  ensure that cancer patients have access to health coverage and treatment during the COVID-19 pandemic.  The letters address pressing needs including oral chemotherapy parity, access to 90-day supplies of medications, and reliable access to telehealth services.   Letter to Congress Letter of Health and Human Services Secretary Alex Azar    

Sarcoma & Coronavirus: Your Questions Answered

  In response to the COVID-19 outbreak, the Sarcoma Foundation of America (SFA) held a live, online session with a panel of sarcoma experts to discuss the impact the coronavirus pandemic is having on sarcoma patients and survivors.  Panelists Brian Van Tine, MD, PhD, Washington University in St. Louis, Kurt Weiss, MD, University of Pittsburgh School of Medicine, and Breelyn Wilky, MD, University of Colorado Cancer Center, answered questions submitted by the sarcoma community.  The panelists shared input on issues related to how on patients can communicate with their physicians on the risks and benefits of current care and treatment…  Read More »

Message to the Sarcoma Community

Like most of you, the Sarcoma Foundation of America (SFA) has been closely following news regarding the novel coronavirus, COVID-19.  While many questions remain regarding the impact that it will have in the United States, SFA is following recommended protocol to help stop the spread by closing our office and teleworking. SFA will continue our efforts to advocate for sarcoma patients and their families and is still available to serve as a resource to the sarcoma community.  You can reach the SFA by phone at 301-253-8687 or by email at info@curesarcoma.org. We are evaluating upcoming events and will be announcing…  Read More »

Twenty Years of the SFA

By Brandi Felser, Executive Director Twenty years later, SFA continues to be a voice and leader for the sarcoma community. Twenty years ago, before SFA, not much attention was paid to sarcoma. There were few treatment options, and no organization or institution focused on developing new therapies or expediting new treatments for patients. Sarcoma was a forgotten cancer. Fast forward 20 years. Sarcoma awareness has substantially increased, more, though not nearly enough, therapies are available, and innovative and novel agents such as immune-oncology are beginning to be applied to sarcoma. And SFA has shown that we have the ability to…  Read More »

The Power of the Sarcoma Community

By Brandi Felser, Executive Director In my very first days on the job as the new Executive Director of the Sarcoma Foundation of America, I had the opportunity to experience first-hand the power of the sarcoma community. For the first time ever, the US Food and Drug Administration (FDA) was reviewing for approval a proposed drug for the treatment of epithelioid sarcoma, a particularly rare and aggressive subtype of sarcoma. Epithelioid sarcoma has few effective treatment options and patients are often left with little or no hope for long-term survival. As a part of the approval process, the benefits of…  Read More »

Sarcoma Foundation of America Announces Brandi Felser as Executive Director

DAMASCUS, Md. – February 3, 2020 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased research, awareness and advocacy for sarcoma, announces Brandi Felser as its new Executive Director.   Felser joins the SFA with more than 20 years of experience in non-profit development and management.  Felser, most recently Chief Operating Officer – Chief of Staff of the National Breast Cancer Coalition, also brings to the SFA a strong background in cancer research advocacy, making her well positioned to lead the organization’s mission to advocate for sarcoma patients by funding research and increasing awareness about this rare…  Read More »

Support Innovative Sarcoma Research

Thanks to you, the Sarcoma Foundation of America has made significant investments in innovative research for new sarcoma therapies, advancing us toward a cure in our time. In 2019, SFA awarded close to $2 million in research funding, making us the leading supporter of sarcoma research in our community. Our research investments have been a catalyst to significant progress. But we know there is still much left to do.  Your year-end gift will help us continue to be the leading voice for patients, survivors, and caregivers, bring more awareness to sarcoma, and make important investments in innovative research.   Donate now and continue…  Read More »

SFA Partners with the My Pediatric and Adult Rare Tumor (MyPART) Network

The Sarcoma Foundation of America (SFA) is proud to have partnered with the My Pediatric and Adult Rare Tumor (MyPART) Network, a project coordinated through the National Cancer Institute’s (NCI) Center for Cancer Research (CCR).  The MyPART Network is a group of patients, family members, researchers, advocates, and healthcare providers who are working together to find treatments for childhood, teen, and young adult rare solid tumors. MyPART believes that working together will help accelerate the discovery of treatments for rare cancer.   The MyPART Networkwas established to bring together patients, their family members, healthcare providers, patient advocates, and researchers to…  Read More »

Help Cure Sarcoma on Giving Tuesday

You know all about Black Friday and Cyber Monday.  But do you know about Giving Tuesday? Giving Tuesday is a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity. After all of the Thanksgiving celebrations come to an end and after the madness of all of the holiday shopping, Giving Tuesday provides the chance to demonstrate generosity and help the causes we care about.  The Sarcoma Foundation of America (SFA) is proud to participate in this global movement. We invite you to join us and help celebrate Giving Tuesday! Give through our…  Read More »