SFA Recent News

Participation in a Market Research Study on Soft Tissue Sarcoma

M3 a market research company, is looking for people who have been diagnosed with Soft Tissue Sarcoma for an in person or webcam/telephone interview. Participants will be helping the company in the development of new treatments and to understand how to best serve patients. A short telephone conversation will confirm whether or not you qualify. You will be compensated for your time. If you live in the LA or Chicago areas, M3 would like to speak with you in person. If you are outside of these areas, it will be a webcam/telephone interview. If you are interested in participating, please contact…  Read More »

Sarcoma Foundation of Announces 2017 Research Grants

  DAMASCUS, Md. – May 24, 2017 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased awareness and research for sarcoma, today announced that it has awarded $500,000 in research funds to deserving scientists at institutions across the United States as part of its 2017 SFA Research Grant program. Ten research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a rare cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the…  Read More »

It’s Been a Privilege

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. This is my last week at the Sarcoma Foundation of America (SFA). Over the last three years it has been my privilege to serve the sarcoma patient community through my role at the SFA. I have meet so many amazing patients, caregivers, doctors and researchers in that time. I have been moved by the challenges that each face, the perseverance that they demonstrate in their individual and collective efforts to achieve better patient outcomes, and the hope and optimism that the sarcoma community…  Read More »

Working and Learning at the SFA

Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day.  Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA.  Last year, she wrote a blog about how kids can help in our efforts to raise money for sarcoma research.  She has once again chosen to serve as a guest blogger during her time in the office.   By Caleigh   Have you ever wondered about the Sarcoma Foundation of…  Read More »

Racing Toward a Cure for Sarcoma

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   In the three years that I have been with the Sarcoma Foundation of America, I have had the privilege of serving the sarcoma community. An important part of my job as CEO is to meet patients, caregivers and loved ones, learn about their patient journeys, and try to understand the challenges that each and every sarcoma patient deals with on their path to becoming a sarcoma survivor. I have also worked closely with sarcoma doctors and researchers, learning about their efforts to…  Read More »

Sarcoma Foundation of America to Honor Lilly Oncology for Advancements in the Treatment of Soft Tissue Sarcoma

– Vision of Hope Award to be presented at the SFA’s 15th Annual Fundraising Gala –   DAMASCUS, Md. – April 10, 2017– The Sarcoma Foundation of America (SFA), an organization dedicated to increased research funding and advocacy for sarcoma, is pleased to announce that Lilly Oncology is the 2017 recipient of the Vision of Hope Award.  Lilly Oncology will be honored at the SFA’s 15th Annual New York fundraising gala, “A Celebration of Life.”  The event will take place on April 20, 2017, at Guastavino’s, 409 E 59th Street, New York, NY. The Vision of Hope Award is presented…  Read More »

Sarcoma Foundation of America Endorses Dr. Scott Gottlieb for FDA Commissioner

In a letter to the Chairman and Ranking Member of the United States Senate Committee on Health, Education, Labor and Pensions (HELP), the Sarcoma Foundation of America (SFA) expressed support for the nomination of Scott Gottlieb, MD, for Commissioner of the Food and Drug Administration.  In the letter, the SFA urged for the conformation of Dr. Gotlieb, writing that “Dr. Gottleib has an exemplary track record of supporting and spearheading efforts to ensure that safe and effective treatments are moved through the review process in an expedient manner. During his tenure as the Deputy Commissioner for Medical and Scientific Affairs at…  Read More »

Survey Opportunity for Soft Tissue Sarcoma Patients

Analysis Group, Inc. (AG) is surveying individuals with Soft Tissue Sarcoma to understand their preferences for treatment of soft tissue sarcoma. Your participation will help to advance knowledge in this field.   The Study: AG is seeking individuals with Soft Tissue Sarcoma to share their views and preferences for treatments of soft tissue sarcoma in an online survey lasting approximately 15-20 minutes.   To Participate: You will be eligible to participate if you meet all of the eligibility criteria described below. Your participation is voluntary. You will not be asked to provide personal identifying information in this survey. Your responses…  Read More »

Rare Disease Day 2017

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Two years ago, I wrote a blog post in honor of Rare Disease Day.  Entitled, “Shedding Light on the Forgotten Cancer,” it was a piece meant to raise awareness for a little known disease on a day designed to bring attention to a community of patients that are so often overlooked. It seems appropriate to share that post again as we are near Rare Disease Day 2017. On the last day of February, the rare disease community will collectively join voices and…  Read More »

A Window of Hope

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   There was a long period of time where there seemed to be little to no progress in finding ways to battle the forgotten cancer known as sarcoma. This period of time lasted for decades, though it probably felt more like centuries to the patients and families that were desperately looking for treatment options that never seemed to come. And while sarcoma still takes too many of our loved ones from us, progress in our fight against this terrible disease is finally being…  Read More »