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Archive for the ‘sarcoma awareness month’ Category

Take Action: Sarcoma Awareness Month

The pages on the calendar have quickly turned and July is again upon us.  For most, July means freedom from school, a summer vacation, or celebrating our nation’s independence.  But those of us in the sarcoma community know that this month means something else as well.  As we know, July is Sarcoma Awareness Month. Why do we have a Sarcoma Awareness Month?  Simply, sarcoma is still considered to be the “forgotten cancer.”  Our efforts to encourage more research and more drug development are made difficult due to a lack of awareness and understanding.  Think about the major efforts that take place…  Read More »

Beating Sarcoma to the Finish Line

SFA is honored to announce that, Marissa Friedman, a sarcoma survivor, runner, and Sarcoma Foundation of America (SFA) volunteer, kicked off the SFA’s inaugural year participating in the San Francisco Marathon on, June 16, 2013. In May 2012, at 27 years old, Marissa was diagnosed with synovial sarcoma which is found in only 800 people annually. Already a runner, she was registered for the 2012 San Francisco Marathon.  Instead of spending the summer training, she was receiving chemotherapy treatment and undergoing surgery to remove the tumor which was wrapped around her femoral artery. Marissa’s strength, determination, and refusal to be…  Read More »

An Open Letter to Miles 2 Give

By Tony Ferlenda, SFA CEO Tomorrow you will complete your courageous and compelling run across the country.  Congratulations!  Your journey has been an incredible thing to witness.  And you have incredible stories to go along with that journey.  Along the way you’ve received an education, you’ve educated others, and you’ve made an impact that you may never completely understand.  You’ve said that the highlight has been the people that you’ve met.  The patients, survivors, families, doctors, nurses and strangers on the street. That’s when you really feel the impact. You think you know, but you have no idea. I’ve used…  Read More »

Sarcoma Awareness Month

Even though Sarcoma Awareness Month will soon be coming to a close, there is still time to take action and help raise the profile of this rare cancer.  Our colleagues at the Sarcoma Alliance have undertaken an effort to have the United States House of Representatives officially recognize July as Sarcoma Awareness Month.  Thanks to their hard work, Rep. Kathy Castor (D-FL) in June introduced H. Res. 722, a resolution expressing support for designation of July as National Sarcoma Awareness Month. Since its introduction, H.Res. 722 has gained two additional co-sponsors.  With the month of July quickly winding down, now…  Read More »

Welcome to our new blog!

The Sarcoma Foundation of America (SFA) is always looking for new ways to bring attention to sarcoma, and the next step in our efforts to educate the world about this little known cancer is through our new blog.  We hope that this will become a place to share inspirational stories, highlight events, and blog about the needs of sarcoma patients to find new and better treatments. So welcome to our inaugural post!  We couldn’t think of a better time to start this blog than in July – during Sarcoma Awareness Month.  While we work every single day to fulfill our…  Read More »