Advocacy and Public Policy

Advocating on behalf of those impacted by sarcoma has been a core principle of the Sarcoma Foundation of America’s mission since the organization was founded in 2001.  The SFA continues to be actively engaged in the public policy arena, urging legislators and regulators to place a high priority on rare cancer research, drug development, and access to quality patient care.

The SFA joins with other coalitions and patient advocacy organizations to work on public policy efforts related to cancer and rare disease issues.


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Call to Action: Email Your Member of Congress

Make your voice heard during Sarcoma Awareness Month! With the sarcoma community coming together during July to support sarcoma awareness, this is a perfect time to use our collective voices to tell Congress about the needs of sarcoma patients and survivors. If you have any questions or need assistance please contact us at

You can make a difference by emailing your legislators and sharing with them why the sarcoma community needs more resources. We’ve made it easy for you to reach out with a sample email and details on how you can identify and find contact information for your Senators and Representative. Email your Congressperson to tell them why we need them to pay attention to the needs of the sarcoma community. The goal is to introduce them to the sarcoma community, impress upon them the need for more resources, especially federal research funding, and encourage them to become a champion for our issues.

Click here for a sample email and tips for contacting your Member of Congress

Letters to the Editor

As part of our sarcoma awareness month action, we are asking the sarcoma community to help us raise awareness by submitting a letter to the editor of your local newspaper. If you have any questions or need assistance please contact us at Also, please be sure to share with us your published letter so we can share with the sarcoma community and track our progress.

Letters to the editor of your local newspaper help to raise awareness about sarcoma and the needs of the sarcoma community. Even if your letter is not printed, letters to the editor help educate the editorial board and influence creates awareness about sarcoma. This increases the likelihood of opinions, other letters and stories being published by the newspaper.

Click here for a sample letter to the editor and tips for submission