Sarcoma Awareness Month 2020

Posts Tagged ‘Advocacy’

Sarcoma Awareness Month 2020

By Brandi Felser, Executive Director Each year, over 16,000 children, women and men are diagnosed with sarcoma and 7,000 lose their lives. Although sarcoma is considered a “rare” cancer, it is not rare to the approximately 50,000 people who are living with the disease. It is not rare to the mothers and fathers, families and friends, who have lost loved ones. Their experiences are, unfortunately, not rare. Certainly, the adjective rare sets sarcoma apart. It means that fewer people are diagnosed with the disease. But the rare designation has more implications. It means that treatment options and research funding has…  Read More »

COVID-19, Collaboration and Sarcoma

By Brandi Felser, Executive Director COVID-19, Collaboration & Sarcoma Treating cancer like a pandemic: Collaboration is necessary to cure sarcoma COVID-19 has hit us like a wrecking ball. There is no part of society that has gone untouched. Despite the damage this pandemic has done, there has been some positive. The “system” of science has been upended and the science community has united, focused on one goal. All of our resources are being pooled to fight this virus. Data and information are being shared in new ways, shared faster and are freely available. #MedTwitter and other science threads offer information…  Read More »

Twenty Years of the SFA

By Brandi Felser, Executive Director Twenty years later, SFA continues to be a voice and leader for the sarcoma community. Twenty years ago, before SFA, not much attention was paid to sarcoma. There were few treatment options, and no organization or institution focused on developing new therapies or expediting new treatments for patients. Sarcoma was a forgotten cancer. Fast forward 20 years. Sarcoma awareness has substantially increased, more, though not nearly enough, therapies are available, and innovative and novel agents such as immune-oncology are beginning to be applied to sarcoma. And SFA has shown that we have the ability to…  Read More »

2016 – A Year of Hope and Progress

Dear Sarcoma Foundation of America Supporter, As the calendar takes us into the holiday season, we take the time to reflect on the year that has passed.  In the sarcoma community, 2016 has been a year of hope and progress.  Two new sarcoma drugs have been approved, one drug for Leiomyosarcoma and Liposarcoma patients and another approved broadly for Soft Tissue Sarcoma patients.  These new therapeutic options give us continued hope for better patient outcomes and represent the progress that sarcoma researchers have made over the last decade. The type of hope and progress that the sarcoma community experienced in…  Read More »

A Moonshot to Cure Cancer Fact Sheet

The White House today released a fact sheet outlining the focus of the newly formed Cancer Moonshot Task Force. Highlights of the new initiative include support for funding increases for cancer-related activities at the National Institutes of Health and the Food and Drug Administration, as well as a focus on activities such as pursuing genomic analysis of tumors and efforts to discover immunotherapies and combination therapies. Please make your voice heard during this process.  Share your story and how you have been impacted by sarcoma with the Vice President and the Cancer Moonshot Task Force.      THE WHITE HOUSE…  Read More »

Faces of Childhood Cancer Project

Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.  There is still time to register.  Please visit the…  Read More »

Sarcoma Awareness Month

Even though Sarcoma Awareness Month will soon be coming to a close, there is still time to take action and help raise the profile of this rare cancer.  Our colleagues at the Sarcoma Alliance have undertaken an effort to have the United States House of Representatives officially recognize July as Sarcoma Awareness Month.  Thanks to their hard work, Rep. Kathy Castor (D-FL) in June introduced H. Res. 722, a resolution expressing support for designation of July as National Sarcoma Awareness Month. Since its introduction, H.Res. 722 has gained two additional co-sponsors.  With the month of July quickly winding down, now…  Read More »