Posts Tagged ‘childhood cancer’
Sarcoma is a rare type of cancer and typically produces malignant tumors derived from the connective tissue. There are more than 70 sarcoma types and subtypes. Soft Tissue Sarcoma Soft tissue sarcoma broadly defines cancers that develop in the body’s soft tissues (i.e. muscles, tendons, fat, lymph vessels, blood vessels, and nerves). While these cancers are most commonly found in the head, neck, arms, legs, chest, and abdomen, they can develop anywhere in the body. There are various different types of soft tissue sarcoma, and depending on the type of soft tissue the cancer started in, the cells will look… Read More »
UPDATE: On March 22, 2018, The United States Senate passed the STAR Act! Now the legislation moves on to the House for consideration. Please contact your Representative to ask them to pass the STAR Act. We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients… Read More »
Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day. Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA. Last year, she wrote a blog about how kids can help in our efforts to raise money for sarcoma research. She has once again chosen to serve as a guest blogger during her time in the office. By Caleigh Have you ever wondered about the Sarcoma Foundation of… Read More »
UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017. UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR… Read More »
September means back to school for many. For us at the Sarcoma Foundation of America (SFA), it also means bringing awareness to the kids and teens fighting Sarcoma. You see, September is Childhood Cancer Awareness Month. Did you know that TWENTY percent of all pediatric cancers are Sarcomas? Children fighting Sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments. Your gifts to the Sarcoma Foundation of America will provide hope to kids like: the toddler diagnosed with rhabdomyosaroma when their milestones should be learning to walk–and run. the school-aged child that has a pain… Read More »
Today’s blog was written by Caleigh H. during her time at the SFA office for “Take Your Child to Work Day.” Caleigh, a 2nd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. Even though she is only 7 years old, Caleigh already understands how devastating sarcoma is, especially since it often impacts children like her. This is why she has taken an interest in helping and has even staffed the SFA booth at CureFest for Childhood Cancer, an event dedicated to raising awareness for childhood cancer. One of her tasks today was to put together a… Read More »
CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016 Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip… Read More »
Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers? September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings. But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments. You can help change that! Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9… Read More »
REGISTER TODAY!! CHILDHOOD CANCER ACTION DAYS WASHINGTON, DC JUNE 15-16, 2015 The Sarcoma Foundation of America, a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Days in Washington, DC, are scheduled for June 15-16, 2015. Once again, organizational members of the Alliance for Childhood Cancer will host a two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The Alliance’s goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives… Read More »
Inspired by the ALS ice bucket challenge, SFA friend and supporter Donnie Sills came up with a fun idea to bring more awareness and funding to sarcoma and childhood cancers. Donnie, who lost his wife last year to rhabdomyosarcoma, is a tireless advocate for sarcoma patients and their families. He knows first-hand how little funding goes towards sarcoma and childhood cancer research and he wants to do something about it. You can learn more about Donnie’s Pie Challenge here. Take his Pie Challenge and encourage others to do the same. Check out some of the people who have taken Donnie up on his challenge…. Read More »
Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress. There is still time to register. Please visit the… Read More »
By guest blogger, Mike Judge On August 29, 2013, I was diagnosed with cancer. Ewing’s sarcoma to be exact. What I thought was just a strained triceps ended up being cancer. I didn’t think that it was even possible to have a primary cancer in an extremity. Sarcoma? I had never heard that word in my life until I walked into the orthopedic surgeon’s office on July 26, 2013. I complained of pain that got worse over my freshman year of college at Penn State and noticed a lump in my triceps muscle towards the end of the year. Was… Read More »
Guest blogger Judith Hannan has been a writer for over 25 years. She is the author of Motherhood Exaggerated (CavanKerry Press, 2012), her memoir of discovery and transformation during her daughter’s sarcoma cancer treatment and her transition into survival. Ms. Hannan’s daughter Nadia was presented with the SFA Courage Award at the SFA Annual Gala in 2010. She is a featured speaker, a teacher of writing about personal experience to homeless mothers and at-risk adolescents and we are pleased that she has agreed to share her insights about her journey and beyond through a blog series. ————– It’s September, time… Read More »
The SFA is delighted to introduce guest blogger Judith Hannan, who has been a writer for over 25 years. She is the author of Motherhood Exaggerated (CavanKerry Press, 2012), her memoir of discovery and transformation during her daughter’s sarcoma cancer treatment and her transition into survival. Ms. Hannan’s daughter Nadia was presented with the SFA Courage Award at the SFA Annual Gala in 2010. She is a featured speaker, a teacher of writing about personal experience to homeless mothers and at-risk adolescents and we are pleased that she has agreed to share her insights about her journey and beyond through… Read More »