Action Alert: Childhood Cancer STAR Act

Posts Tagged ‘childhood cancer’

Action Alert: Childhood Cancer STAR Act

  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Bring Hope to Sarcoma Warriors This Holiday Season

Dear Friend of the Sarcoma Foundation of America, What do the Holidays Mean to you? “Sarcomas are bad, bad, actors.” The doctor’s solemn warning still echoes in my head and reverberates through my whole body this time of year… nearly 20 years after he uttered the words. The holiday season can bring excitement and anticipation as well as fond memories of frenzied shopping trips, festive parties, and spending time with loved ones. But for me, sketchy images from a raw, colorless day in November of 1998 also flash through my mind. “Your son has a rare aggressive cancer called alveolar…  Read More »

Working and Learning at the SFA

Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day.  Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA.  Last year, she wrote a blog about how kids can help in our efforts to raise money for sarcoma research.  She has once again chosen to serve as a guest blogger during her time in the office.   By Caleigh   Have you ever wondered about the Sarcoma Foundation of…  Read More »

Take Action: Childhood Cancer STAR Act

  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »

Honor the Kids and Teens Fighting Sarcoma Today

September means back to school for many. For us at the Sarcoma Foundation of America (SFA), it also means bringing awareness to the kids and teens fighting Sarcoma. You see, September is Childhood Cancer Awareness Month. Did you know that TWENTY percent of all pediatric cancers are Sarcomas? Children fighting Sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments. Your gifts to the Sarcoma Foundation of America will provide hope to kids like: the toddler diagnosed with rhabdomyosaroma when their milestones should be learning to walk–and run. the school-aged child that has a pain…  Read More »

Kids Can Help

Today’s blog was written by Caleigh H. during her time at the SFA office for “Take Your Child to Work Day.”  Caleigh, a 2nd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs.  Even though she is only 7 years old, Caleigh already understands how devastating sarcoma is, especially since it often impacts children like her.  This is why she has taken an interest in helping and has even staffed the SFA booth at CureFest for Childhood Cancer, an event dedicated to raising awareness for childhood cancer.  One of her tasks today was to put together a…  Read More »

Childhood Cancer Action Days

CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

Childhood Cancer Awareness Month

  Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers?   September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings.  But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments.   You can help change that!  Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9…  Read More »

Register Now – Childhood Cancer Action Days

REGISTER TODAY!! CHILDHOOD CANCER ACTION DAYS WASHINGTON, DC JUNE 15-16, 2015   The Sarcoma Foundation of America, a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Days in Washington, DC, are scheduled for June 15-16, 2015. Once again, organizational members of the Alliance for Childhood Cancer will host a two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The Alliance’s goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives…  Read More »

Donnie Sills’ Pie Challenge for Sarcoma and Childhood Cancers

Inspired by the ALS ice bucket challenge, SFA friend and supporter Donnie Sills came up with a fun idea to bring more awareness and funding to sarcoma and childhood cancers. Donnie, who lost his wife last year to rhabdomyosarcoma, is a tireless advocate for sarcoma patients and their families.  He knows first-hand how little funding goes towards sarcoma and childhood cancer research and he wants to do something about it.   You can learn more about Donnie’s Pie Challenge here. Take his Pie Challenge and encourage others to do the same. Check out some of the people who have taken Donnie up on his challenge….  Read More »