Posts Tagged ‘pediatric cancer’

SFA Now Accepting Applications for 2020 Research Grants

  For complete instructions and guidelines, please review the 2020 Funding Opportunity Announcement PDF.  Information can also be found in the Grants FAQ. Interested parties may begin submitting grant applications on Tuesday, October 1, 2019.  Grants will be reviewed by the SFA Medical Advisory Board immediately following the application deadline of 5:00 pm EST on January 31, 2020.  Researchers must submit proposals electronically at proposalCENTRAL.  First-time users will be required to register and complete a professional profile in order to apply for an SFA research grant.  The SFA does not accept applications via e-mail.

SFA Launches “Sarcoma Heroes” Public Service Announcement

Due to the rarity of the disease, many people are not aware of sarcoma until diagnosis. The Sarcoma Foundation of America and the sarcoma community aim to change that by bringing awareness to the disease.  Our newest Public Service Announcement campaign, titled “Sarcoma Heroes,” shares the message of all of the heroes who are working to make difference and encourages listeners to join forces with them in the fight to cure sarcoma.  Listen to the PSAs: “Sarcoma Heroes” 60 Second PSA “Sarcoma Heroes” 30 Second PSA The PSAs are also available at www.curesarcoma.org/sfa-in-the-news/. You can be a part of the effort…  Read More »

Study Opportunity – Share What Matters Most to People with Cancer

If you have ever received a sarcoma diagnosis, our colleagues at The Cancer Support Community need your help. Read their message below to learn how you can share your thoughts on what matters most to those living with cancer. Subject: Help us understand what matters most to people with cancer! The Cancer Support Community (CSC) is looking for people to help develop a new tool to understand what matters most to people living with cancer. Please consider participating if you have ever received a cancer diagnosis, are at least 18 years old, and can read English. Participants who complete the survey…  Read More »

What is Sarcoma?

Sarcoma is a rare type of cancer and typically produces malignant tumors derived from the connective tissue.  There are more than 70 sarcoma types and subtypes. Soft Tissue Sarcoma Soft tissue sarcoma broadly defines cancers that develop in the body’s soft tissues (i.e. muscles, tendons, fat, lymph vessels, blood vessels, and nerves). While these cancers are most commonly found in the head, neck, arms, legs, chest, and abdomen, they can develop anywhere in the body. There are various different types of soft tissue sarcoma, and depending on the type of soft tissue the cancer started in, the cells will look…  Read More »

Action Alert: Childhood Cancer STAR Act

  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Hope Through Advocacy and Policy

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. As I write my last blog for the year, I can’t help but to think about the time of year and what it means for everyone. The Holiday Season is a time of hope and renewal, a time to spend with family and friends, and time to celebrate the special moments and accomplishments of the year. It is also a time to embrace the hope and excitement of the new year. With that said, I’d like to share with you the outcomes of…  Read More »

Take Action: Childhood Cancer STAR Act

  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »

Honor the Kids and Teens Fighting Sarcoma Today

September means back to school for many. For us at the Sarcoma Foundation of America (SFA), it also means bringing awareness to the kids and teens fighting Sarcoma. You see, September is Childhood Cancer Awareness Month. Did you know that TWENTY percent of all pediatric cancers are Sarcomas? Children fighting Sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments. Your gifts to the Sarcoma Foundation of America will provide hope to kids like: the toddler diagnosed with rhabdomyosaroma when their milestones should be learning to walk–and run. the school-aged child that has a pain…  Read More »

Childhood Cancer Action Days

CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

A Moonshot to Cure Cancer Fact Sheet

The White House today released a fact sheet outlining the focus of the newly formed Cancer Moonshot Task Force. Highlights of the new initiative include support for funding increases for cancer-related activities at the National Institutes of Health and the Food and Drug Administration, as well as a focus on activities such as pursuing genomic analysis of tumors and efforts to discover immunotherapies and combination therapies. Please make your voice heard during this process.  Share your story and how you have been impacted by sarcoma with the Vice President and the Cancer Moonshot Task Force.      THE WHITE HOUSE…  Read More »

Childhood Cancer Awareness Month

  Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers?   September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings.  But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments.   You can help change that!  Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9…  Read More »

Register Now – Childhood Cancer Action Days

REGISTER TODAY!! CHILDHOOD CANCER ACTION DAYS WASHINGTON, DC JUNE 15-16, 2015   The Sarcoma Foundation of America, a member of the Alliance for Childhood Cancer, is pleased to announce that this year’s Childhood Cancer Action Days in Washington, DC, are scheduled for June 15-16, 2015. Once again, organizational members of the Alliance for Childhood Cancer will host a two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The Alliance’s goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives…  Read More »

Faces of Childhood Cancer Project

Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.  There is still time to register.  Please visit the…  Read More »

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