Sarcoma Awareness Month is Over, but the Work Does Not End

Posts Tagged ‘sarcoma awareness month’

Sarcoma Awareness Month is Over, but the Work Does Not End

By Brandi Felser, Executive Director This July, we joined together as a community for Sarcoma Awareness Month to honor patients and survivors, remember the loved ones we have lost, and raise awareness about sarcoma. We wore yellow, engaged in educational activities, and shared stories about patient journeys and our loved ones. Thousands of members of the sarcoma community joined SFA for our National Virtual Race to Cure Sarcoma to help raise much needed funds for sarcoma research, and 14 million people were reached through the PSAs that were run in cities across the country. The combined efforts of the sarcoma…  Read More »

Sarcoma Foundation of America Oral Therapy Preferences Survey Results

Sarcoma Foundation of America Oral Therapy Preferences Survey Results In late June, the Sarcoma Foundation of America (SFA) launched a sarcoma advocate survey to collect patient, survivor, and caregiver opinions on oral therapy usage preferences.  The survey was shared through SFA’s social media platforms, the SFA website, the SFA newsletter, and through a widely-distributed email. More than 150 respondents took part in the survey. Half of respondents identified themselves to be sarcoma survivors or patients in current treatment. Patients in treatment and sarcoma survivors were asked to provide their subtype. More than 20 subtypes were represented in the answers, with…  Read More »

Sarcoma Awareness Month 2020

By Brandi Felser, Executive Director Each year, over 16,000 children, women and men are diagnosed with sarcoma and 7,000 lose their lives. Although sarcoma is considered a “rare” cancer, it is not rare to the approximately 50,000 people who are living with the disease. It is not rare to the mothers and fathers, families and friends, who have lost loved ones. Their experiences are, unfortunately, not rare. Certainly, the adjective rare sets sarcoma apart. It means that fewer people are diagnosed with the disease. But the rare designation has more implications. It means that treatment options and research funding has…  Read More »

Sarcoma Awareness Month Social Media Toolkit

Sarcoma Awareness Month Social Media Toolkit During July, the sarcoma community unites together for Sarcoma Awareness Month to bring more attention to the needs of sarcoma patients, survivors, and their families.  Though the Sarcoma Foundation of America (SFA) works tirelessly every day to raise awareness, during Sarcoma Awareness Month we aim to further highlight the need for more sarcoma research and better sarcoma therapies. Please join us in our efforts to raise more awareness! One way to raise sarcoma awareness is by spreading the word through social media.  Social media can be a powerful tool to share your story and…  Read More »

Epithelioid Sarcoma Infographic

For Sarcoma Awareness Month, Epizyme has developed an infographic to spread awareness for epithelioid sarcoma. Click here to download the infographic in its entirety.               

Sarcoma Awareness Month

  July is upon us! Each person in the Sarcoma Foundation of America (SFA) community has the power to make an impact and help increase awareness for this relentless cancer. Let’s come together to generate needed resources for research. Interested in helping during Sarcoma Awareness Month? Check out our ONE STOP SHOP for everything Sarcoma Awareness Month. Help spread the word by sharing this page with others.     1. Start Out the Month by signing our White House petition. The sarcoma advocacy community has joined forces on a petition urging the White House to officially designate the month of July as…  Read More »

A Letter to Vice President Biden

Today’s post comes to us from Brendan Locke.  Brendan’s wife Melissa was diagnosed with sarcoma in January 2016.  Since that time, her disease has been at the forefront of their lives. As you might imagine, Brendan has made it his mission to see that she receives the best treatment possible.  He has also made advocacy and sarcoma awareness a significant priority, working not only to improve things for Melissa, but also to serve as a voice for the greater good.  Brendan recently wrote to Vice President Joe Biden, the force behind the Cancer Moonshot initiative, to share Melissa’s story and bring attention to the needs…  Read More »

Take Action: Sarcoma Awareness Month

The pages on the calendar have quickly turned and July is again upon us.  For most, July means freedom from school, a summer vacation, or celebrating our nation’s independence.  But those of us in the sarcoma community know that this month means something else as well.  As we know, July is Sarcoma Awareness Month. Why do we have a Sarcoma Awareness Month?  Simply, sarcoma is still considered to be the “forgotten cancer.”  Our efforts to encourage more research and more drug development are made difficult due to a lack of awareness and understanding.  Think about the major efforts that take place…  Read More »

Sarcoma Awareness Month – Be a Part of Finding the Cure

Are you looking for the 2016 petition?  Visit https://petitions.whitehouse.gov/petition/designate-july-sarcoma-awareness-month to sign the Sarcoma Awareness Month Petition. Did you know that July is Sarcoma Awareness Month?   Help the Sarcoma Foundation of America (SFA) bring awareness to sarcoma research and find a cure in our time.  Below are three ways that you can take action and make a difference!   Give Five ($5) to Help Others Survive Help a sarcoma researcher find a cure for this insidious disease. Funds donated will be used to fund a research grant! A $50,000 grant will be awarded to a researcher who has made it his/her…  Read More »

ACTION ALERT: Sign the Sarcoma Awareness Month Petition

    Dear Sarcoma Advocate, The Sarcoma Foundation of America needs your help to bring much needed awareness to sarcoma.  A petition asking the Obama Administration to officially recognize July as Sarcoma Awareness Month has been created on WhiteHouse.gov.  Please take a moment to sign this petition and help us send the message that more attention needs to be given to the needs of the entire sarcoma community. Once you have signed, please forward this link to your friends, families, supporters, and other sarcoma advocates and ask them to do the same.   You can share the petition on social media or…  Read More »