Posts Tagged ‘sarcoma awareness’

11-Year-Old Halle Raises Funds and Awareness for Sarcoma

Today’s blog post was written by Halle, an 11-year-old sarcoma advocate.  Halle, inspired by her mother’s experience with sarcoma, has become active in sarcoma advocacy and fundraising.  Not only has she traveled to Washington, DC, to speak to Members of Congress, she also coordinated a fundraiser at her elementary school.  We have no doubt that you will be as impressed and inspired by Halle as we have been. I am 11 years old and I am going into middle school next year.  I have always known my Mom had cancer.  My Mom got cancer in her foot when she was pregnant with me. …  Read More »

Take Action: Sarcoma Awareness Month

The pages on the calendar have quickly turned and July is again upon us.  For most, July means freedom from school, a summer vacation, or celebrating our nation’s independence.  But those of us in the sarcoma community know that this month means something else as well.  As we know, July is Sarcoma Awareness Month. Why do we have a Sarcoma Awareness Month?  Simply, sarcoma is still considered to be the “forgotten cancer.”  Our efforts to encourage more research and more drug development are made difficult due to a lack of awareness and understanding.  Think about the major efforts that take place…  Read More »

Bringing New Therapies to Market

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Over the past few weeks we’ve seen the Food and Drug Administration (FDA) make decisions regarding some investigational therapies for sarcoma.  In that time, one investigational new drug received priority review status, which cuts the drug review period from 10 months to six months.  Another was given fast track designation.  This designation is also intended to expedited the review process for “serious conditions with unmet medical need.”  Certainly sarcoma falls into that category. The Sarcoma Foundation of America (SFA) has long been…  Read More »

Sarcoma Foundation of America Announces 14th Annual Fundraising Gala

– John H. Healey, MD, and Advaxis Immunotherapies among the honorees at the “Celebration of Life”-   DAMASCUS, Md.  – April 14, 2016 – The Sarcoma Foundation of America (SFA) today announced that the 14th Annual SFA New York fundraising gala, “A Celebration of Life,” will take place on May 12, 2016, at Guastavino’s, 409 E 59th Street, New York, NY.  The New York event raises money to fund innovative sarcoma research that will lead to the development of new and better therapies for sarcoma patients. “A Celebration of Life” will honor those who have battled sarcoma, as well as…  Read More »

Thank You

 Today’s post was written by Bert E. Thomas IV, PhD, CEO of the Sarcoma Foundation of America.   Like most in the sarcoma advocacy community, you are probably very well acquainted with July as Sarcoma Awareness Month.  You’ve no doubt heard of September being known as Childhood Cancer Awareness Month.  Hopefully you’ve also become familiar with the last day in February being set aside for Rare Disease Day.  As you know, each of these campaigns gives us special opportunities to bring awareness to the needs of sarcoma patients, caregivers, and survivors.  SFA supporters like you always step up and help us…  Read More »

Childhood Cancer Action Days

CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

Tweet chat on drug development

Sarcoma medical oncologist Laurence H. Baker, DO (@LaurenceBaker2), will answer your questions on drug development during a 45-minute tweet chat on Thursday, September 24, at 9 pm (EST). Dr. Baker is a professor of internal medicine and pharmacology at the University of Michigan Medical School in Ann Arbor. He has served as director for clinical research and hematology/oncology at UM’s Comprehensive Cancer Center; chairman of the Southwest Oncology Group, the largest clinical trials organization in the United States; executive director of the Sarcoma Alliance for Research through Collaboration, a national cooperative group that runs sarcoma clinical trials; and president of the…  Read More »

American Income Life Supports Sarcoma Foundation

American Income Life Supports Sarcoma Foundation Donations will help fund research and education POMPANO BEACH, FL SEPTEMBER 11, 2015 — American Income Life Insurance Company, headquartered in Waco, TX, in partnership with State General Agents Tom Williams and David Zophin, donated $10,000 to the Sarcoma Foundation of America (South Florida Chapter) as part of the Company’s Closer to the Heart program of charitable giving. Tom Williams, State General Agent of the Williams-Zophin Agency, representing American Income Life in the south Florida region, presented the donation to Bert Thomas, CEO of Sarcoma Foundation of America at Williams-Zophin’s main office in Pompano…  Read More »

Childhood Cancer Awareness Month

  Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers?   September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings.  But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments.   You can help change that!  Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9…  Read More »

2015 Sarcoma Foundation of America Honorees

Every year, the Sarcoma Foundation of America (SFA) honors those who have demonstrated strength and perseverance in their battle with sarcoma. On April 30, during the 13th Annual Sarcoma Foundation of America fundraiser, A Celebration of Life, the SFA will honor some very deserving individuals who have inspired other sarcoma patients by demonstrating that they do not have to be physically, emotionally or spiritually defeated by sarcoma. We are pleased to introduce you to this inspiring group of people. We hope that you will be as touched by their stories as we have been.   Richard Gorlick, MD – Nobility…  Read More »

Sarcoma Advocacy: Rare Disease Week 2015

Each year, the last week of February  is set aside as a time dedicated to raising awareness for the incredible needs of the rare disease community.  Last month, several sarcoma advocates made the journey to Washington, DC, to participate in the activities of Rare Disease Week.  Advocates from around the United States came together to participate in several events, including a legislative conference hosted by the Rare Disease Legislative Advocates (RDLA), as well as a day of meetings on Capitol Hill.  During this time, advocates shared their stories with legislators and their staff to demonstrate why more needs to be…  Read More »

You are Critical to our Cause

A message from Sarcoma Foundation of America CEO, Bert Thomas, PhD, MBA Dear Friend of the Sarcoma Foundation of America, As we approach the end of another year, the Sarcoma Foundation of America (SFA) would like to take a moment to thank you. Because of supporters like you, the SFA has been able to invest more than $5 million over the past 11 years in much needed sarcoma research. You have made the SFA the leading voice for sarcoma patients! Thanks to your generous donations this year, the Sarcoma Foundation of America has made substantial investments over the course of 2014 to advance toward the cure…  Read More »

Maire’s Journey

I would like to introduce Keith Famie to the SFA Family. Keith is an award-winning documentary director whose next project is about a sarcoma patient.  As his website explains, “Maire’s Journey” is a “90-minute, emotionally touching documentary story that follows the final months of a 24-year old cancer patient, Maire Kent (pronounced “Mary”), and the fulfillment of her last wish for her ashes to travel to the ocean in a custom built sailboat hand-crafted by a blind carpenter.” Keith has asked that we share the following letter with everyone as he is keen to help the SFA fight sarcoma through…  Read More »

Faces of Childhood Cancer Project

Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.  There is still time to register.  Please visit the…  Read More »

SFA Courage Awards

2014 Sarcoma Foundation of America Courage Award Recipients Every year, the Sarcoma Foundation of America (SFA) honors those who have demonstrated strength and perseverance in their battle with sarcoma.  On May 5, during the 12th Annual Sarcoma Foundation of America Gala, the SFA will present Courage Awards to some very deserving individuals who have inspired other sarcoma patients by demonstrating that they do not have to be physically, emotionally or spiritually defeated by sarcoma. We are pleased to introduce you to this inspiring group of people.  We hope that you will be as touched by their stories as we have…  Read More »

Mike Judge vs. Ewing’s Sarcoma

By guest blogger, Mike Judge On August 29, 2013, I was diagnosed with cancer. Ewing’s sarcoma to be exact. What I thought was just a strained triceps ended up being cancer. I didn’t think that it was even possible to have a primary cancer in an extremity. Sarcoma? I had never heard that word in my life until I walked into the orthopedic surgeon’s office on July 26, 2013. I complained of pain that got worse over my freshman year of college at Penn State  and noticed a lump in my triceps muscle towards the end of the year. Was…  Read More »

Life — The Adventure

By guest blogger, Jamie Schou In January 2012, after experiencing some soreness in my ribs, I went to my chiropractor for an adjustment.  He was working on my back when he noticed a large mass.  After an unsuccessful surgery at a local hospital – the surgeon thought the mass was a Lipoma – and lots of searching, in March of 2012 we found an orthopedic surgeon who determined the mass was a Synovial Sarcoma.   I went down the usual path – chemo, radiation and surgery.  The sugery was a 16 hour ordeal.  The tumor was deep in my muscle,…  Read More »

Beating Sarcoma to the Finish Line

SFA is honored to announce that, Marissa Friedman, a sarcoma survivor, runner, and Sarcoma Foundation of America (SFA) volunteer, kicked off the SFA’s inaugural year participating in the San Francisco Marathon on, June 16, 2013. In May 2012, at 27 years old, Marissa was diagnosed with synovial sarcoma which is found in only 800 people annually. Already a runner, she was registered for the 2012 San Francisco Marathon.  Instead of spending the summer training, she was receiving chemotherapy treatment and undergoing surgery to remove the tumor which was wrapped around her femoral artery. Marissa’s strength, determination, and refusal to be…  Read More »

An Open Letter to Miles 2 Give

By Tony Ferlenda, SFA CEO Tomorrow you will complete your courageous and compelling run across the country.  Congratulations!  Your journey has been an incredible thing to witness.  And you have incredible stories to go along with that journey.  Along the way you’ve received an education, you’ve educated others, and you’ve made an impact that you may never completely understand.  You’ve said that the highlight has been the people that you’ve met.  The patients, survivors, families, doctors, nurses and strangers on the street. That’s when you really feel the impact. You think you know, but you have no idea. I’ve used…  Read More »

Chronicling a Child’s Illness and Finding Transformation

The SFA is delighted to introduce guest blogger Judith Hannan, who has been a writer for over 25 years.  She is the author of Motherhood Exaggerated (CavanKerry Press, 2012), her memoir of discovery and transformation during her daughter’s sarcoma cancer treatment and her transition into survival.  Ms. Hannan’s daughter Nadia was presented with the SFA Courage Award at the SFA Annual Gala in 2010.  She is a featured speaker, a teacher of writing about personal experience to homeless mothers and at-risk adolescents and we are pleased that she has agreed to share her insights about her journey and beyond through…  Read More »

Keep up the Momentum

We know that we’ve been writing a lot about Rita Saverino Romeo’s appearance on “NY Med.”  But having sarcoma on a national stage like this was simply unprecedented.  Just think – millions of people watched her story.  Millions of people have now heard of sarcoma, many of them likely for the first time.  Based on the reactions that we’ve seen on Facebook, Twitter, and the “NY Med” website, people were genuinely touched and amazed by her story. The fact is, Rita’s story is one of many.  But she was given an opportunity that most will never have – the opportunity…  Read More »