Todd Barron, the father of two beautiful young daughters, married to the love of his life, Debra, was forty-three when he was diagnosed with Ewing’s sarcoma in February 2018. Since his initial diagnosis, Todd has undergone two major surgical resections of his lower leg, twenty rounds of chemotherapy, and over forty-five sessions of radiation therapy. He participated in a clinical trial of a promising new treatment for soft tissue sarcomas and eventually had an above the knee amputation of his left leg. Unfortunately, just over a month after his amputation, while he was starting the long and challenging process of learning to walk using a prosthetic leg, he was told the sarcoma had metastasized to his lungs. The news was devastating. At this point, he had exhausted all known cures for Ewing’s sarcoma. Todd started treatment with Votrient knowing it would not be a cure but could potentially extend his life dramatically. The treatment has been successful, and his sarcoma has been relatively under control for the past year. He has had a few small tumors grow during this time, but they have been successfully treated with radiation therapy.
Throughout all these treatments, Todd has never stopped working as a financial advisor, volunteering with various charities, and spending quality time on memorable vacations with family and friends. His positive attitude has been inspirational to all who know him. Some might say that Todd is living like he is dying, but if you ask him, he is just living with sarcoma. Always one to go out of his way to help others, Todd now mentors another young father recently diagnosed with Ewing’s sarcoma. He hopes to inspire this friend and other people like him, to enjoy the good things in life while living with this disease. Todd knows there is no cure for his Ewing’s sarcoma yet. He understands that there will likely not be a cure in his lifetime. But he is grateful for the life he is able to live right now, enjoying his large and supportive network of loving family and friends, while his sarcoma is under control, enabling him to live another glorious day.