Now more than ever, the sarcoma community needs to unite and advocate for change. With the current administration proposing cuts to vital programs that support sarcoma research and patient care, it’s crucial to make our voices heard.
Sarcoma Advocate Julie Harp beautifully sums up why the Sarcoma Community Advocacy Weekend is so important. Julie says, “Being Don’s audible voice has become my personal tag line which I will continue to use any time I am able to speak about him and the entire Sarcoma community. It has become my recognizable tagline amongst those who have encountered me and our story. I use the line to refer to the fact that Don is no longer physically present to speak on his own behalf. However, I also think about when he was present in life he had no idea people were speaking on his behalf before his diagnosis (he didn’t know he needed a voice). Once he started treatment his focus had to remain on his treatment and living as fully as possible in those circumstances. Therefore I think we speak for those yet to be diagnosed, those currently living with Sarcoma, and those who are physically inaudible.”
Learn more by watching our Advocacy Day Information Session.
Join the sarcoma community in Washington D.C. this July for our Advocacy Weekend (July 16th-18th, 2026). This impactful weekend will include:
July 16th
Sarcoma Community Advocacy Day: Meet with elected officials to share your story and advocate for increased research funding and improved access to care for sarcoma patients. We will host virtual information session(s) prior to Advocacy Day so you feel comfortable knowing how to prepare and what to expect in your meetings. Additionally, we have reserved a space to use as headquarters on this day. We will kick off the day with a huddle before heading out to spread our voice. The day will wrap with a Congressional Reception at the Rayburn House Office Building from 5-7PM. Light refreshments and beverages will be served.
July 17th
Education Day: Learn about the drug development process and the vital role advocacy plays in expanding treatment access for sarcoma patients. You will hear from a variety of experts in the sarcoma landscape and public policy space throughout the day. Breakfast and lunch will be provided. The programming for this day will take place in the same place we use for our headquarters on Advocacy Day.
July 18th
Race to Cure Sarcoma (RTCS) Washington, D.C.: Join us at the Lincoln Memorial for our premier run/walk event, raising awareness and funds for sarcoma research. (Separate Registration) Register for RTCS DC
General Items to Note
Washington D.C. traditionally has very warm weather in mid-July, averaging highs in mid to upper 80’s. Participants should be prepared for time spent in the heat walking between various buildings. It is important participants remain hydrated throughout the weekend.
SFA has secured a hotel room block at Hotel George (15 E Street, Washington D.C. 20001) with a nightly room rate of $159. This is optional and at the expense of the attendee. Please let us know below if you intend to utilize this offering.
Sign up below to learn more or register for 2026 Advocacy Weekend:
