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Now more than ever, the sarcoma community needs to unite and advocate for change. With the current administration proposing cuts to vital programs that support sarcoma research and patient care, it’s crucial to make our voices heard.
Sarcoma Advocate Julie Harp beautifully sums up why the Sarcoma Community Advocacy Weekend is so important. Julie says, “Being Don’s audible voice has become my personal tag line which I will continue to use any time I am able to speak about him and the entire Sarcoma community. It has become my recognizable tagline amongst those who have encountered me and our story. I use the line to refer to the fact that Don is no longer physically present to speak on his own behalf. However, I also think about when he was present in life he had no idea people were speaking on his behalf before his diagnosis (he didn’t know he needed a voice). Once he started treatment his focus had to remain on his treatment and living as fully as possible in those circumstances. Therefore I think we speak for those yet to be diagnosed, those currently living with Sarcoma, and those who are physically inaudible.”
Learn more by watching our Advocacy Day Information Session.
Join the sarcoma community in Washington D.C. this July for our Advocacy Weekend (July 15th-18th, 2026). This impactful weekend will include:
July 15th
Congressional Reception: Kick off Sarcoma Advocacy Weekend by gathering with Members of Congress and their staff to connect, discuss key policy priorities, and build lasting relationships. This important reception offers a unique opportunity to elevate the voices of the sarcoma community, share personal stories, and directly influence the policies that shape research, treatment, and patient care. The reception will take place from 5-7PM
July 16th
Sarcoma Community Advocacy Day: Meet with elected officials to share your story and advocate for increased research funding and improved access to care for sarcoma patients. We will host virtual information session(s) prior to Advocacy Day so you feel comfortable knowing how to prepare and what to expect in your meetings. Additionally, we have reserved a space to use as headquarters on this day. We will kick off the day with a huddle before heading out to spread our voice. Breakfast and lunch will be served in our headquarter space.
July 17th
Education Day: Learn about the drug development process and the vital role advocacy plays in expanding treatment access for sarcoma patients. You will hear from a variety of experts in the sarcoma landscape and public policy space throughout the day. Breakfast and lunch will be provided. Education Day will take place at the Hall of States Building located at 444 North Capital Street NW in Washington D.C.
July 18th
Race to Cure Sarcoma (RTCS) Washington, D.C.: Join us at the Lincoln Memorial for our premier run/walk event, raising awareness and funds for sarcoma research. (Separate Registration) Register for RTCS DC
What to Expect:
July is Washington D.C.’s hottest month, with average highs around 88°F and humidity that makes it feel closer to 100°F or above, especially in direct sunlight. Afternoons can feel thick and oppressive, and brief thunderstorms are common, so participants should come prepared for a range of conditions throughout the day.
Tips to Make the Most of Your Weekend
• Stay hydrated. Bring a reusable water bottle and sip throughout the day, even if you don’t feel thirsty. The heat and humidity can take a toll quickly, especially while walking between buildings.
• Dress for the heat. Lightweight, loose-fitting, light-colored clothing in breathable fabrics like linen or moisture-wicking materials will go a long way. Comfortable walking shoes are a must.
• Protect yourself from the sun. Sunscreen, a hat, and sunglasses are highly recommended for any time spent outdoors. The UV index in July is rated “high,” so reapplying sunscreen throughout the day is a good idea.
• Take advantage of cool spaces. Air-conditioned headquarters and Congressional buildings are great opportunities to cool down and recharge between outdoor walks.
• Listen to your body. If you feel dizzy, overheated, or unusually fatigued, step inside, grab some water, and rest. Your wellbeing comes first.
Hotel & Logistics
SFA has secured a hotel room block at Hotel George (15 E Street, Washington D.C. 20001) with a nightly room rate of $159. This is optional and at the expense of the attendee. Please let us know by June 22nd if you intend to utilize this offering.
Sign up below to learn more or register for 2026 Advocacy Weekend:
