Public Policy Issues that SFA Supports

SFA has joined 99 rare disease health organizations and NORD in signing a letter urging the resumption of Congressional negotiations to develop a comprehensive FDA user fee package. This legislation would accelerate the FDA’s ability to review critical products to treat patients fighting serious conditions including sarcoma.

Read the letter here.

SFA joined ASCO’s and Alliance for Childhood Cancer’s endorsement letters in support of the Clinical Treatment Act. A bipartisan bill to expand access to clinical trials.

Read text of the bill here: https://www.congress.gov/bill/116th-congress/house-bill/913/text

Read text of the letters and an infographic here:

Alliance for Childhood Cancer Endorsement – CLINICAL TREATMENT Act

Clinical Treatment Act Infographic

Senate CLINICAL TREATMENT Act Community Endorsement Letter