Childhood Cancer Action Days

Posts Tagged ‘Capitol Hill’

Childhood Cancer Action Days

CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

Sarcoma Advocacy: Rare Disease Week 2015

Each year, the last week of February  is set aside as a time dedicated to raising awareness for the incredible needs of the rare disease community.  Last month, several sarcoma advocates made the journey to Washington, DC, to participate in the activities of Rare Disease Week.  Advocates from around the United States came together to participate in several events, including a legislative conference hosted by the Rare Disease Legislative Advocates (RDLA), as well as a day of meetings on Capitol Hill.  During this time, advocates shared their stories with legislators and their staff to demonstrate why more needs to be…  Read More »