Sarcoma Advocacy: Rare Disease Week 2015

Posts Tagged ‘Congress’

Sarcoma Advocacy: Rare Disease Week 2015

Each year, the last week of February  is set aside as a time dedicated to raising awareness for the incredible needs of the rare disease community.  Last month, several sarcoma advocates made the journey to Washington, DC, to participate in the activities of Rare Disease Week.  Advocates from around the United States came together to participate in several events, including a legislative conference hosted by the Rare Disease Legislative Advocates (RDLA), as well as a day of meetings on Capitol Hill.  During this time, advocates shared their stories with legislators and their staff to demonstrate why more needs to be…  Read More »

Sarcoma Awareness Month

Even though Sarcoma Awareness Month will soon be coming to a close, there is still time to take action and help raise the profile of this rare cancer.  Our colleagues at the Sarcoma Alliance have undertaken an effort to have the United States House of Representatives officially recognize July as Sarcoma Awareness Month.  Thanks to their hard work, Rep. Kathy Castor (D-FL) in June introduced H. Res. 722, a resolution expressing support for designation of July as National Sarcoma Awareness Month. Since its introduction, H.Res. 722 has gained two additional co-sponsors.  With the month of July quickly winding down, now…  Read More »