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Archive for the ‘childhood cancer’ Category

Action Alert: Childhood Cancer STAR Act

  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Take Action: Childhood Cancer STAR Act

  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »

Childhood Cancer Action Days

CHILDHOOD CANCER ACTION DAYS WASHINGTON, D.C. MAY 16-17, 2016      Join us on May 16-17 You’re invited to join the Sarcoma Foundation of America and the Alliance for Childhood Cancer for the 5th Annual Childhood Cancer Action Days. This two-day event in Washington brings our community together to advocate for important childhood cancer issues currently before Congress. Your Voice Matters: A strong showing of advocates at Action Days 2016 is more crucial than ever, as we anticipate the Childhood Cancer STAR Act will be at a critical point in the legislative process. Sharing your story in Washington this spring will help us tip…  Read More »

Childhood Cancer Awareness Month

  Did you know that sarcomas represent 1% of all cancers but 15% of all childhood cancers?   September is Childhood Cancer Awareness Month. For many children that means back to school and all the excitement it brings.  But instead of worrying about new clothes and school supplies, children fighting sarcoma are dealing with terrifying visits to the hospital for surgery, chemotherapy and radiation treatments.   You can help change that!  Your contribution to the Sarcoma Foundation of America (SFA) will provide hope to a young boy like Damon, whose doctors discovered osteosarcoma in his left arm when he was just 9…  Read More »

Donnie Sills’ Pie Challenge for Sarcoma and Childhood Cancers

Inspired by the ALS ice bucket challenge, SFA friend and supporter Donnie Sills came up with a fun idea to bring more awareness and funding to sarcoma and childhood cancers. Donnie, who lost his wife last year to rhabdomyosarcoma, is a tireless advocate for sarcoma patients and their families.  He knows first-hand how little funding goes towards sarcoma and childhood cancer research and he wants to do something about it.   You can learn more about Donnie’s Pie Challenge here. Take his Pie Challenge and encourage others to do the same. Check out some of the people who have taken Donnie up on his challenge….  Read More »

Faces of Childhood Cancer Project

Alliance for Childhood Cancer Faces of Childhood Cancer Project The Alliance for Childhood Cancer, of which the Sarcoma Foundation of America is a member, is hosting the 2014 Childhood Cancer Action Days in June. The Action Days include issues and advocacy training, and pre-arranged Capitol Hill visits with Congressional Representatives and their staff. The goal is to provide the childhood cancer community – parents, children, healthcare professionals and others – with the opportunity to visit their Representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.  There is still time to register.  Please visit the…  Read More »

Mike Judge vs. Ewing’s Sarcoma

By guest blogger, Mike Judge On August 29, 2013, I was diagnosed with cancer. Ewing’s sarcoma to be exact. What I thought was just a strained triceps ended up being cancer. I didn’t think that it was even possible to have a primary cancer in an extremity. Sarcoma? I had never heard that word in my life until I walked into the orthopedic surgeon’s office on July 26, 2013. I complained of pain that got worse over my freshman year of college at Penn State  and noticed a lump in my triceps muscle towards the end of the year. Was…  Read More »

Earning our Gold Ribbons

Guest blogger Judith Hannan has been a writer for over 25 years.  She is the author of Motherhood Exaggerated (CavanKerry Press, 2012), her memoir of discovery and transformation during her daughter’s sarcoma cancer treatment and her transition into survival.  Ms. Hannan’s daughter Nadia was presented with the SFA Courage Award at the SFA Annual Gala in 2010.  She is a featured speaker, a teacher of writing about personal experience to homeless mothers and at-risk adolescents and we are pleased that she has agreed to share her insights about her journey and beyond through a blog series. ————– It’s September, time…  Read More »

Chronicling a Child’s Illness and Finding Transformation

The SFA is delighted to introduce guest blogger Judith Hannan, who has been a writer for over 25 years.  She is the author of Motherhood Exaggerated (CavanKerry Press, 2012), her memoir of discovery and transformation during her daughter’s sarcoma cancer treatment and her transition into survival.  Ms. Hannan’s daughter Nadia was presented with the SFA Courage Award at the SFA Annual Gala in 2010.  She is a featured speaker, a teacher of writing about personal experience to homeless mothers and at-risk adolescents and we are pleased that she has agreed to share her insights about her journey and beyond through…  Read More »