Posts Tagged ‘sarcoma cancer’
Brian A. Van Tine, MD, PhD Assistant Professor of Medicine, Sarcoma Program Director, Washington University in St. Louis 2013 Sarcoma Foundation of America Research Grant Recipient: “A Metabolomic Approach to Targeting ASS1 Deficient Sarcomas” 2014 Sarcoma Foundation of America Research Grant Recipient: “Targeting the Pentose Phosphate Pathway for the Treatment of Synovial Sarcoma” 2017 Sarcoma Foundation of America Research Grant Recipient: “Targeting the alterations of Lipid Metabolism in ASS1 Deficient Sarcomas to Induce Synthetic Lethality” PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. I am an Assistant Professor of Medicine in the Department of Medicine at Washington… Read More »
Kurt Richard Weiss, MD Assistant Professor, Department of Orthopaedic Surgery, Division of Musculoskeletal Oncology, Director of the Cancer Stem Cell Laboratory, University of Pittsburgh Medical Center 2013 Sarcoma Foundation of America Research Grant Recipient: “Investigation Of Novel Anti-Metastatic Therapy For Osteosarcoma” PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. Although there are dozens of distinct histologic subtypes of sarcoma, they all share one deadly characteristic: the propensity to metastasize (spread) to the lungs. Indeed, pulmonary metastases are the main cause of mortality in sarcoma patients of all ages. Although the… Read More »
Every year, the Sarcoma Foundation of America (SFA) honors those who have demonstrated strength and perseverance in their battle with sarcoma. On April 30, during the 13th Annual Sarcoma Foundation of America fundraiser, A Celebration of Life, the SFA will honor some very deserving individuals who have inspired other sarcoma patients by demonstrating that they do not have to be physically, emotionally or spiritually defeated by sarcoma. We are pleased to introduce you to this inspiring group of people. We hope that you will be as touched by their stories as we have been. Richard Gorlick, MD – Nobility… Read More »
Each year, the last week of February is set aside as a time dedicated to raising awareness for the incredible needs of the rare disease community. Last month, several sarcoma advocates made the journey to Washington, DC, to participate in the activities of Rare Disease Week. Advocates from around the United States came together to participate in several events, including a legislative conference hosted by the Rare Disease Legislative Advocates (RDLA), as well as a day of meetings on Capitol Hill. During this time, advocates shared their stories with legislators and their staff to demonstrate why more needs to be… Read More »
DEC. 22, 2014 – ANN ARBOR, MICH. – Focused on their mission to identify new treatments for sarcoma, an uncommon cancer, SARC has leveraged a generous donation to secure the support of the Sarcoma Foundation of America (SFA) and the What Would Willie Want Foundation (QuadW) in a collaborative effort to support a new multi-institutional clinical trial of an anti-PD1 agent. The company who is providing their drug and support for the study of soft tissue sarcoma agreed to provide their drug to study bone sarcomas if additional funding could be secured. SARC secured generous commitments from the Sarcoma Foundation… Read More »
A message from Sarcoma Foundation of America CEO, Bert Thomas, PhD, MBA Dear Friend of the Sarcoma Foundation of America, As we approach the end of another year, the Sarcoma Foundation of America (SFA) would like to take a moment to thank you. Because of supporters like you, the SFA has been able to invest more than $5 million over the past 11 years in much needed sarcoma research. You have made the SFA the leading voice for sarcoma patients! Thanks to your generous donations this year, the Sarcoma Foundation of America has made substantial investments over the course of 2014 to advance toward the cure… Read More »
I would like to introduce Keith Famie to the SFA Family. Keith is an award-winning documentary director whose next project is about a sarcoma patient. As his website explains, “Maire’s Journey” is a “90-minute, emotionally touching documentary story that follows the final months of a 24-year old cancer patient, Maire Kent (pronounced “Mary”), and the fulfillment of her last wish for her ashes to travel to the ocean in a custom built sailboat hand-crafted by a blind carpenter.” Keith has asked that we share the following letter with everyone as he is keen to help the SFA fight sarcoma through… Read More »
This past Sunday at the Sarcoma Foundation of America’s Annual Patient Educational Conference, attendees heard a very interesting presentation from Dr. Nicola Mason regarding research for a promising new therapy for osteosarcoma in canines. It was particularly exciting to learn from Dr. Mason that the preliminary data from this study shows a strong rationale to begin exploring this potential therapy in humans. A day later, Advaxis, the biotechnology company developing this potential therapy, announced in a press release that it “intends to initiate a clinical development program with its product candidate, ADXS-cHER2, for the treatment of pediatric osteosarcoma.” To give… Read More »
By guest blogger, Mike Judge On August 29, 2013, I was diagnosed with cancer. Ewing’s sarcoma to be exact. What I thought was just a strained triceps ended up being cancer. I didn’t think that it was even possible to have a primary cancer in an extremity. Sarcoma? I had never heard that word in my life until I walked into the orthopedic surgeon’s office on July 26, 2013. I complained of pain that got worse over my freshman year of college at Penn State and noticed a lump in my triceps muscle towards the end of the year. Was… Read More »
By guest blogger, Jamie Schou In January 2012, after experiencing some soreness in my ribs, I went to my chiropractor for an adjustment. He was working on my back when he noticed a large mass. After an unsuccessful surgery at a local hospital – the surgeon thought the mass was a Lipoma – and lots of searching, in March of 2012 we found an orthopedic surgeon who determined the mass was a Synovial Sarcoma. I went down the usual path – chemo, radiation and surgery. The sugery was a 16 hour ordeal. The tumor was deep in my muscle,… Read More »
SFA is honored to announce that, Marissa Friedman, a sarcoma survivor, runner, and Sarcoma Foundation of America (SFA) volunteer, kicked off the SFA’s inaugural year participating in the San Francisco Marathon on, June 16, 2013. In May 2012, at 27 years old, Marissa was diagnosed with synovial sarcoma which is found in only 800 people annually. Already a runner, she was registered for the 2012 San Francisco Marathon. Instead of spending the summer training, she was receiving chemotherapy treatment and undergoing surgery to remove the tumor which was wrapped around her femoral artery. Marissa’s strength, determination, and refusal to be… Read More »
By Tony Ferlenda, SFA CEO Tomorrow you will complete your courageous and compelling run across the country. Congratulations! Your journey has been an incredible thing to witness. And you have incredible stories to go along with that journey. Along the way you’ve received an education, you’ve educated others, and you’ve made an impact that you may never completely understand. You’ve said that the highlight has been the people that you’ve met. The patients, survivors, families, doctors, nurses and strangers on the street. That’s when you really feel the impact. You think you know, but you have no idea. I’ve used… Read More »
By Cookie Rumely, Guest Blogger The love of my life, Paul Rumely, was diagnosed nine years ago with a soft tissue sarcoma. Sarcoma? We had never even heard of the disease and his was so rare that there were hardly any statistics. Approximately one year later, after having fought an amazingly courageous battle, Paul passed away at age 59 in 2005, with even the most notable doctor imaginable in charge of his case. Since 2005, it has been my great pleasure and honor to be involved with the Sarcoma Foundation of America in his memory. I just couldn’t imagine not… Read More »
As we quickly approach the end of 2012, we at the Sarcoma Foundation of America (SFA) would like to take a moment to reflect on some of the major accomplishments achieved over the past year. These successes are possible because of you! Because of the wonderful contributions made by SFA supporters like you, we are able to move more rapidly toward our shared goal – eradicating sarcoma. Earlier this week, Mark Thornton, President of the SFA Board of Directors, sent a letter to SFA members and donors thanking them for the role that they played in the successes that the… Read More »