Sarcoma Awareness Month 2020

Posts Tagged ‘curesarcoma’

Sarcoma Awareness Month 2020

By Brandi Felser, Executive Director Each year, over 16,000 children, women and men are diagnosed with sarcoma and 7,000 lose their lives. Although sarcoma is considered a “rare” cancer, it is not rare to the approximately 50,000 people who are living with the disease. It is not rare to the mothers and fathers, families and friends, who have lost loved ones. Their experiences are, unfortunately, not rare. Certainly, the adjective rare sets sarcoma apart. It means that fewer people are diagnosed with the disease. But the rare designation has more implications. It means that treatment options and research funding has…  Read More »

Sarcoma Awareness Month Social Media Toolkit

Sarcoma Awareness Month Social Media Toolkit During July, the sarcoma community unites together for Sarcoma Awareness Month to bring more attention to the needs of sarcoma patients, survivors, and their families.  Though the Sarcoma Foundation of America (SFA) works tirelessly every day to raise awareness, during Sarcoma Awareness Month we aim to further highlight the need for more sarcoma research and better sarcoma therapies. Please join us in our efforts to raise more awareness! One way to raise sarcoma awareness is by spreading the word through social media.  Social media can be a powerful tool to share your story and…  Read More »

Research Review: Promising Research Advancements in Sarcoma

Join us for the next session in the Sarcoma Foundation of America’s Live Expert Chat series during Sarcoma Awareness Month. On Saturday, July 18, 2020, SFA will host a panel of sarcoma experts who will discuss the latest insights on advancements in sarcoma research. Drs. Sujana Movva, Katherine Thornton, and Jonathan Trent will share their thoughts and analysis of sarcoma research efforts that were presented during the American Society for Clinical Oncology’s (ASCO) Annual Meeting in May. Webinar participants will have the opportunity to submit questions to the panel during the session.   Saturday, July 18, 2020 12:00 pm EDT…  Read More »

We Need You for the National Race to Cure Sarcoma Virtual Event

    In celebration of Sarcoma Awareness Month, the Sarcoma Foundation of America invites you to join us for the National Race to Cure Sarcoma Virtual event on July 25, 2020. July is an important month for the sarcoma community because it is a time dedicated to those who have been touched by sarcoma. Although we are miles apart, we are connected through our common goal to find a cure for this disease. Join us as we virtually gather together to raise much needed awareness and research dollars in support of sarcoma patients and survivors and ultimately an end to…  Read More »

Sarcoma and Coronavirus: What Now?

Now that many states and localities are starting to lift shelter-in-place restrictions and move into phases of reopening, what do sarcoma patients need to know? As a follow-up to our April session, the Sarcoma Foundation of America is reuniting the panel of sarcoma experts to share their thoughts on how COVID-19 may continue to impact care and what sarcoma patients need to know as we begin the phases of reopening. Our multidisciplinary panel will answer your questions and address concerns on issues of care, the impact on research and clinical trials, and next steps as we move forward.     Saturday,…  Read More »

COVID-19, Collaboration and Sarcoma

By Brandi Felser, Executive Director COVID-19, Collaboration & Sarcoma Treating cancer like a pandemic: Collaboration is necessary to cure sarcoma COVID-19 has hit us like a wrecking ball. There is no part of society that has gone untouched. Despite the damage this pandemic has done, there has been some positive. The “system” of science has been upended and the science community has united, focused on one goal. All of our resources are being pooled to fight this virus. Data and information are being shared in new ways, shared faster and are freely available. #MedTwitter and other science threads offer information…  Read More »

Race to Cure Sarcoma Needs You Now More Than Ever

  The Race to Cure Sarcoma needs you now more than ever!   The current COVID-19 situation has caused events all over the country to be rescheduled or canceled. At the Sarcoma Foundation of America (SFA), the safety of sarcoma patients and RTCS participants are our top priority.   SFA is closely following federal government and individual state reopening plans and SFA is taking these plans into consideration as we make decisions to reschedule events or change to virtual events.   We know we must continue our goal of supporting research that leads to life saving treatments for sarcoma patients…  Read More »

Help Cure Sarcoma on #GivingTuesdayNow

The heart of the Sarcoma Foundation of America is research and donors like you have made SFA the leading research and sarcoma patient advocacy organization in the country. Join SFA for the GivingTuesdayNow Global Campaign Around the end of November each year, people all over the world come together and donate for GivingTuesday.  We are always awestruck by the sense of community created when millions of people collectively support charitable organizations on a single day. GivingTuesdayNow is a new global effort being held on May 5 to promote charitable organizations and their need for support during these uncertain times. SFA is…  Read More »

Advocate Profile: Brittany Symonds

  “I refuse to let cancer win. Cancer will not determine how I live.” -Brittany Symonds   A sarcoma diagnosis can have a life changing impact on the lives of those in our communities, but one of our advocates and Race to Cure Sarcoma Tampa participants is showing us that we do not have to let this diagnosis take away from us what we love in life.    Brittany Symonds was diagnosed in summer of 2015 with leiomyosarcoma in her leg after she was injured when playing softball. This led to more than 11 surgeries, radiation, multiple scans, and having to face the…  Read More »

SFA Joins Other Cancer Organizations on Pandemic Response Letters

The Sarcoma Foundation of America joined more than 50 other cancer organizations on letters to Congress and Department of Health and Human Services Secretary Alex Azar calling on legislators and the Administration to  ensure that cancer patients have access to health coverage and treatment during the COVID-19 pandemic.  The letters address pressing needs including oral chemotherapy parity, access to 90-day supplies of medications, and reliable access to telehealth services.   Letter to Congress Letter of Health and Human Services Secretary Alex Azar