Sarcoma & Coronavirus: Your Questions Answered

Posts Tagged ‘sarcoma’

Sarcoma & Coronavirus: Your Questions Answered

  In response to the COVID-19 outbreak, the Sarcoma Foundation of America (SFA) held a live, online session with a panel of sarcoma experts to discuss the impact the coronavirus pandemic is having on sarcoma patients and survivors.  Panelists Brian Van Tine, MD, PhD, Washington University in St. Louis, Kurt Weiss, MD, University of Pittsburgh School of Medicine, and Breelyn Wilky, MD, University of Colorado Cancer Center, answered questions submitted by the sarcoma community.  The panelists shared input on issues related to how on patients can communicate with their physicians on the risks and benefits of current care and treatment…  Read More »

Message to the Sarcoma Community

Like most of you, the Sarcoma Foundation of America (SFA) has been closely following news regarding the novel coronavirus, COVID-19.  While many questions remain regarding the impact that it will have in the United States, SFA is following recommended protocol to help stop the spread by closing our office and teleworking. SFA will continue our efforts to advocate for sarcoma patients and their families and is still available to serve as a resource to the sarcoma community.  You can reach the SFA by phone at 301-253-8687 or by email at info@curesarcoma.org. We are evaluating upcoming events and will be announcing…  Read More »

Twenty Years of the SFA

By Brandi Felser, Executive Director Twenty years later, SFA continues to be a voice and leader for the sarcoma community. Twenty years ago, before SFA, not much attention was paid to sarcoma. There were few treatment options, and no organization or institution focused on developing new therapies or expediting new treatments for patients. Sarcoma was a forgotten cancer. Fast forward 20 years. Sarcoma awareness has substantially increased, more, though not nearly enough, therapies are available, and innovative and novel agents such as immune-oncology are beginning to be applied to sarcoma. And SFA has shown that we have the ability to…  Read More »

The Power of the Sarcoma Community

By Brandi Felser, Executive Director In my very first days on the job as the new Executive Director of the Sarcoma Foundation of America, I had the opportunity to experience first-hand the power of the sarcoma community. For the first time ever, the US Food and Drug Administration (FDA) was reviewing for approval a proposed drug for the treatment of epithelioid sarcoma, a particularly rare and aggressive subtype of sarcoma. Epithelioid sarcoma has few effective treatment options and patients are often left with little or no hope for long-term survival. As a part of the approval process, the benefits of…  Read More »

Sarcoma Foundation of America Announces Brandi Felser as Executive Director

DAMASCUS, Md. – February 3, 2020 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased research, awareness and advocacy for sarcoma, announces Brandi Felser as its new Executive Director.   Felser joins the SFA with more than 20 years of experience in non-profit development and management.  Felser, most recently Chief Operating Officer – Chief of Staff of the National Breast Cancer Coalition, also brings to the SFA a strong background in cancer research advocacy, making her well positioned to lead the organization’s mission to advocate for sarcoma patients by funding research and increasing awareness about this rare…  Read More »

Support Innovative Sarcoma Research

Thanks to you, the Sarcoma Foundation of America has made significant investments in innovative research for new sarcoma therapies, advancing us toward a cure in our time. In 2019, SFA awarded close to $2 million in research funding, making us the leading supporter of sarcoma research in our community. Our research investments have been a catalyst to significant progress. But we know there is still much left to do.  Your year-end gift will help us continue to be the leading voice for patients, survivors, and caregivers, bring more awareness to sarcoma, and make important investments in innovative research.   Donate now and continue…  Read More »

SFA Partners with the My Pediatric and Adult Rare Tumor (MyPART) Network

The Sarcoma Foundation of America (SFA) is proud to have partnered with the My Pediatric and Adult Rare Tumor (MyPART) Network, a project coordinated through the National Cancer Institute’s (NCI) Center for Cancer Research (CCR).  The MyPART Network is a group of patients, family members, researchers, advocates, and healthcare providers who are working together to find treatments for childhood, teen, and young adult rare solid tumors. MyPART believes that working together will help accelerate the discovery of treatments for rare cancer.   The MyPART Networkwas established to bring together patients, their family members, healthcare providers, patient advocates, and researchers to…  Read More »

Help Cure Sarcoma on Giving Tuesday

You know all about Black Friday and Cyber Monday.  But do you know about Giving Tuesday? Giving Tuesday is a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity. After all of the Thanksgiving celebrations come to an end and after the madness of all of the holiday shopping, Giving Tuesday provides the chance to demonstrate generosity and help the causes we care about.  The Sarcoma Foundation of America (SFA) is proud to participate in this global movement. We invite you to join us and help celebrate Giving Tuesday! Give through our…  Read More »

SFA Now Accepting Applications for 2020 Research Grants

  For complete instructions and guidelines, please review the 2020 Funding Opportunity Announcement PDF.  Information can also be found in the Grants FAQ. Interested parties may begin submitting grant applications on Tuesday, October 1, 2019.  Grants will be reviewed by the SFA Medical Advisory Board immediately following the application deadline of 5:00 pm EST on January 31, 2020.  Researchers must submit proposals electronically at proposalCENTRAL.  First-time users will be required to register and complete a professional profile in order to apply for an SFA research grant.  The SFA does not accept applications via e-mail.

SFA Launches “Sarcoma Heroes” Public Service Announcement

Due to the rarity of the disease, many people are not aware of sarcoma until diagnosis. The Sarcoma Foundation of America and the sarcoma community aim to change that by bringing awareness to the disease.  Our newest Public Service Announcement campaign, titled “Sarcoma Heroes,” shares the message of all of the heroes who are working to make difference and encourages listeners to join forces with them in the fight to cure sarcoma.  Listen to the PSAs: “Sarcoma Heroes” 60 Second PSA “Sarcoma Heroes” 30 Second PSA The PSAs are also available at www.curesarcoma.org/sfa-in-the-news/. You can be a part of the effort…  Read More »