SFA Partners with the My Pediatric and Adult Rare Tumor (MyPART) Network

Posts Tagged ‘sarcoma’

SFA Partners with the My Pediatric and Adult Rare Tumor (MyPART) Network

The Sarcoma Foundation of America (SFA) is proud to have partnered with the My Pediatric and Adult Rare Tumor (MyPART) Network, a project coordinated through the National Cancer Institute’s (NCI) Center for Cancer Research (CCR).  The MyPART Network is a group of patients, family members, researchers, advocates, and healthcare providers who are working together to find treatments for childhood, teen, and young adult rare solid tumors. MyPART believes that working together will help accelerate the discovery of treatments for rare cancer.   The MyPART Networkwas established to bring together patients, their family members, healthcare providers, patient advocates, and researchers to…  Read More »

Help Cure Sarcoma on Giving Tuesday

You know all about Black Friday and Cyber Monday.  But do you know about Giving Tuesday? Giving Tuesday is a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity. After all of the Thanksgiving celebrations come to an end and after the madness of all of the holiday shopping, Giving Tuesday provides the chance to demonstrate generosity and help the causes we care about.  The Sarcoma Foundation of America (SFA) is proud to participate in this global movement. We invite you to join us and help celebrate Giving Tuesday! Give through our…  Read More »

SFA Now Accepting Applications for 2020 Research Grants

  For complete instructions and guidelines, please review the 2020 Funding Opportunity Announcement PDF.  Information can also be found in the Grants FAQ. Interested parties may begin submitting grant applications on Tuesday, October 1, 2019.  Grants will be reviewed by the SFA Medical Advisory Board immediately following the application deadline of 5:00 pm EST on January 31, 2020.  Researchers must submit proposals electronically at proposalCENTRAL.  First-time users will be required to register and complete a professional profile in order to apply for an SFA research grant.  The SFA does not accept applications via e-mail.

SFA Launches “Sarcoma Heroes” Public Service Announcement

Due to the rarity of the disease, many people are not aware of sarcoma until diagnosis. The Sarcoma Foundation of America and the sarcoma community aim to change that by bringing awareness to the disease.  Our newest Public Service Announcement campaign, titled “Sarcoma Heroes,” shares the message of all of the heroes who are working to make difference and encourages listeners to join forces with them in the fight to cure sarcoma.  Listen to the PSAs: “Sarcoma Heroes” 60 Second PSA “Sarcoma Heroes” 30 Second PSA The PSAs are also available at www.curesarcoma.org/sfa-in-the-news/. You can be a part of the effort…  Read More »

Study Opportunity – Share What Matters Most to People with Cancer

If you have ever received a sarcoma diagnosis, our colleagues at The Cancer Support Community need your help. Read their message below to learn how you can share your thoughts on what matters most to those living with cancer. Subject: Help us understand what matters most to people with cancer! The Cancer Support Community (CSC) is looking for people to help develop a new tool to understand what matters most to people living with cancer. Please consider participating if you have ever received a cancer diagnosis, are at least 18 years old, and can read English. Participants who complete the survey…  Read More »

What is Sarcoma?

Sarcoma is a rare type of cancer and typically produces malignant tumors derived from the connective tissue.  There are more than 70 sarcoma types and subtypes. Soft Tissue Sarcoma Soft tissue sarcoma broadly defines cancers that develop in the body’s soft tissues (i.e. muscles, tendons, fat, lymph vessels, blood vessels, and nerves). While these cancers are most commonly found in the head, neck, arms, legs, chest, and abdomen, they can develop anywhere in the body. There are various different types of soft tissue sarcoma, and depending on the type of soft tissue the cancer started in, the cells will look…  Read More »

Volunteer Profile: Thomas Rank

By Thomas Rank, Guest Contributor Why do I ride? On a warm day in the summer of 2015, I arrived at my first cross country practice. The team always met at the local park shelter before practice where the summer breeze would often compliment the harmonious symphony of chatter and laughter between teammates. Suddenly, the talking would cease and our coach, who in his own right is a great man and leader, would begin his speech about the daily agenda. While listening, I couldn’t help but notice Ben Harmon have a smile across his face. He raised his hand and…  Read More »

Find Support and Share Experiences Through Sarcoma Connect

  The Sarcoma Foundation of America is excited to announce that we have partnered with Inspire to bring a new online support community to sarcoma patients, survivors, and caregivers.  Sarcoma Connect provides a secure space where those impacted by sarcoma can anonymously chat, share experiences, ask questions, and receive support from those who understand what they are going through.  We invite you to join the discussion and connect with others at www.inspire.com/groups/sarcomaconnect/.   

Teens Coordinate Concert Series to Raise Money for Sarcoma Research and Awareness

By Elizabeth Brown, Guest Contributor   My name is Elizabeth Brown and I am 14 years old. I have a twin brother named Matthew. Our good friend and classmate was recently diagnosed with rhabdomyosarcoma, and we wanted to show our support by doing something that would benefit him and all people fighting sarcoma. We knew that we could make a difference through our talents of music. I play classical guitar, violin, and sing, and Matthew plays piano and organ. Together, we organized the St. Mark Young Artists Concert series to benefit the Sarcoma Foundation of America. We performed a variety…  Read More »

Meet the Doctor – Kenneth Cardona, MD, FACS

Kenneth Cardona, MD, FACS, Associate Professor of Surgery, Winship Cancer Institute at Emory University Race to Cure Sarcoma™ Atlanta   What inspired you to specialize in sarcoma? The rarity and complexity of this disease in combination with our limited treatment options outside of surgical therapy inspired me to focus my advanced surgical training in surgical oncology on this unique disease. What is the focus of the research performed in your lab? I am the lead and principal investigator of the Unites States Sarcoma Collaborative, which is a multi-institutional research effort amongst 8 academic institutions across the US studying this rare…  Read More »