SFA News

Sarcoma Foundation of America Announces 2018 Research Grant Awards

DAMASCUS, Md. – May 10, 2018 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased research and awareness for sarcoma, today announced that it has awarded half a million dollars in research funds to deserving scientists as part of its 2018 SFA Research Grant program.  Ten research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the grants to the best, most…  Read More »

Meet the Doctor – Kenneth Cardona, MD, FACS

Kenneth Cardona, MD, FACS, Associate Professor of Surgery, Winship Cancer Institute at Emory University Race to Cure Sarcoma™ Atlanta   What inspired you to specialize in sarcoma? The rarity and complexity of this disease in combination with our limited treatment options outside of surgical therapy inspired me to focus my advanced surgical training in surgical oncology on this unique disease. What is the focus of the research performed in your lab? I am the lead and principal investigator of the Unites States Sarcoma Collaborative, which is a multi-institutional research effort amongst 8 academic institutions across the US studying this rare…  Read More »

Sarcoma Foundation of America to Present Dr. James Wittig with the Nobility in Science Award

DAMASCUS, Md. – March 1, 2018 – The Sarcoma Foundation of America (SFA) today announced that renown orthopedic surgeon James C. Wittig, MD, is the 2018 recipient of the organization’s prestigious Nobility in Science Award. Dr. Wittig is being recognized for his contributions to sarcoma cancer research, treatment, education, and advocacy during a ceremony at the SFA’s 16th Annual fundraising event, Stand Up to Sarcoma, on Thursday, May 3, 2018, at Guastavino’s in Manhattan. The Nobility in Science Award is given to an outstanding scientist who is dedicated to the advancement of knowledge of sarcoma and works tirelessly to find new…  Read More »

The Race to Cure Sarcoma is Bigger & Better in 2018

Excitement for the 2018 Race to Cure Sarcoma™ season is building as we head into what will no doubt be our biggest and best year yet!  The Race to Cure Sarcoma™ remains the premier run/walk series in the United States focused on raising awareness and research funds for sarcoma.    Organized by the Sarcoma Foundation of America (SFA), the Race to Cure Sarcoma™ is made up of family-friendly 5K run/walks held in cities across the nation. Last year, nearly 3,500 people participated in the Race to Cure Sarcoma™.    What makes the 2018 Race to Cure Sarcoma™ so exciting?    …  Read More »

2017 Year in Review

We are nearing the end of the first month of 2018 and the sarcoma Foundation of America (SFA) is grateful for everything that you’ve done in 2017. Your work makes a difference in the lives of sarcoma patients and their families While we can’t wait to see what the rest of 2018 will bring, we first want to take a moment to look back on the previous year. Thanks to your support and generosity, the Sarcoma Foundation of America had an exceptional 2017!  In 2017, your gifts: Funded more than three quarters of a million dollars in sarcoma research.  …  Read More »

Meet the Researcher – William K. Decker, PhD

William K. Decker, PhD, Associate Professor, Baylor College of Medicine   2016 Pittsburgh Cure Sarcoma Co-Founder Carl Firetto Memorial Research Award: “Outbred Canine Model of Adjuvant Immunotherapy for Angiosarcoma”   PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. We study the basic immunobiology of dendritic cells and the manner by which this critical cell subtype orchestrates TH polarization. TH polarization sounds complicated – and it is – but can be explained relatively easily. The adaptive immune system makes two main types of fundamentally different immune responses. One of these responses, termed TH2, is aimed at eliminating pathogens that…  Read More »

Action Alert: Childhood Cancer STAR Act

  UPDATE: On March 22, 2018, The United States Senate passed the STAR Act!  Now the legislation moves on to the House for consideration.  Please contact your Representative to ask them to pass the STAR Act.    We need your help! Time is running out for Congress to take up The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act. The STAR Act would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences, enhance the quality of life for childhood cancer survivors, and ensure publicly accessible expanded access policies that provide hope for patients…  Read More »

Teen Comedy Contest for the #CureSarcoma Cause

 Today’s post was written by Sara Jade Alan, a sarcoma survivor and author. On the evening of November 17, at Smoky Hill High School, Colorado’s first-ever Teen Comedy Contest was held. In a cafeteria transformed by talented teen techies into a theater space complete with stage lighting, over fifty students from six high school improv troupes around the Denver metro area gathered together. They brought their energy, excitement, and chops for making-stuff-up-on-the-spot, all to benefit a great cause…and to compete for improv glory. With troupe names like the Flustered Mustards (Heritage HS), Method to Madness (Cherokee Trail HS), Regular Irregulars (East…  Read More »

The Healing Power of Comedy

 Today’s post was written by Sara Jade Alan, a sarcoma survivor and author.   In 2005, I was in my twenties and living and performing comedy in New York City. I had just completed an eight-month yoga-teacher training program when I discovered a lump on my outer left thigh. I thought it would be nothing, but I went to see an orthopedic doctor about it to make sure. He coolly told me: tumor. I remember walking out of his office onto the blustery NYC street, the giant X-ray envelope whipping around in my hands like a sail—as if to warn, the…  Read More »

Meet the Researcher – Andrew Koff, PhD

Andrew Koff, PhD, Member and Professor, Sloan Kettering Institute, Memorial Sloan Kettering Cancer Center   2014 Heidi Connery Memorial Research Grant: “Proteomic and genomic approaches to understanding intrinsic and acquired resistance to CDK4 inhibition therapy in well differentiated/dedifferentiated liposarcoma”   PLEASE DESCRIBE THE FOCUS OF THE RESEARCH PERFORMED IN YOUR LAB. The laboratory of cell cycle regulation at Memorial Sloan Kettering Cancer Center is interested in identifying the genes and proteins that regulate the transition of cells from quiescence, a reversible type of proliferative exit, to senescence, a more stable irreversible type of proliferative exit.  Proliferation associated with a deregulated cell cycle…  Read More »

2017 Artwork Contest Winners

The results of our 2017 Children’s Sarcoma Artwork Contest are in and it’s a tie! Congratulations to both Alli and Ellie, 11-year-old twins. They created their pieces in memory of their beloved brother, Brice. Brice passed away from Epithelioid Sarcoma. Alli’s artwork will be featured on the SFA’s 2017 holiday card. Ellie’s work will be used for new SFA note cards. Both Alli and Ellie’s artwork is now featured in our SFA shop!  Visit http://www.cafepress.com/curesarcoma and click on the “Children’s Artwork” tab to see the newest merchandise with Alli and Ellie’s designs. Thank you again to everyone who submitted their art. All…  Read More »

Participation in a Market Research Study on Soft Tissue Sarcoma

M3 a market research company, is looking for people who have been diagnosed with Soft Tissue Sarcoma for an in person or webcam/telephone interview. Participants will be helping the company in the development of new treatments and to understand how to best serve patients. A short telephone conversation will confirm whether or not you qualify. You will be compensated for your time. If you live in the LA or Chicago areas, M3 would like to speak with you in person. If you are outside of these areas, it will be a webcam/telephone interview. If you are interested in participating, please contact…  Read More »

Sarcoma Foundation of Announces 2017 Research Grants

  DAMASCUS, Md. – May 24, 2017 – The Sarcoma Foundation of America (SFA), an organization dedicated to increased awareness and research for sarcoma, today announced that it has awarded $500,000 in research funds to deserving scientists at institutions across the United States as part of its 2017 SFA Research Grant program. Ten research grants, each worth $50,000, have been awarded to researchers who have made it their mission to study sarcoma, a rare cancer that arises in the body’s soft tissue and bone. All proposals are peer reviewed by members of the SFA Medical Advisory Board who award the…  Read More »

It’s Been a Privilege

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. This is my last week at the Sarcoma Foundation of America (SFA). Over the last three years it has been my privilege to serve the sarcoma patient community through my role at the SFA. I have meet so many amazing patients, caregivers, doctors and researchers in that time. I have been moved by the challenges that each face, the perseverance that they demonstrate in their individual and collective efforts to achieve better patient outcomes, and the hope and optimism that the sarcoma community…  Read More »

Working and Learning at the SFA

Today’s blog was written by Caleigh during her time at the Sarcoma Foundation of America’s office for “Take Your Child to Work” day.  Caleigh, a 3rd grader, is the daughter of Lori Hoffman, SFA’s Senior Manager of Public Policy and External Affairs. This is Caleigh’s third year helping out at the SFA.  Last year, she wrote a blog about how kids can help in our efforts to raise money for sarcoma research.  She has once again chosen to serve as a guest blogger during her time in the office.   By Caleigh   Have you ever wondered about the Sarcoma Foundation of…  Read More »

Racing Toward a Cure for Sarcoma

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   In the three years that I have been with the Sarcoma Foundation of America, I have had the privilege of serving the sarcoma community. An important part of my job as CEO is to meet patients, caregivers and loved ones, learn about their patient journeys, and try to understand the challenges that each and every sarcoma patient deals with on their path to becoming a sarcoma survivor. I have also worked closely with sarcoma doctors and researchers, learning about their efforts to…  Read More »

Sarcoma Foundation of America to Honor Lilly Oncology for Advancements in the Treatment of Soft Tissue Sarcoma

– Vision of Hope Award to be presented at the SFA’s 15th Annual Fundraising Gala –   DAMASCUS, Md. – April 10, 2017– The Sarcoma Foundation of America (SFA), an organization dedicated to increased research funding and advocacy for sarcoma, is pleased to announce that Lilly Oncology is the 2017 recipient of the Vision of Hope Award.  Lilly Oncology will be honored at the SFA’s 15th Annual New York fundraising gala, “A Celebration of Life.”  The event will take place on April 20, 2017, at Guastavino’s, 409 E 59th Street, New York, NY. The Vision of Hope Award is presented…  Read More »

Sarcoma Foundation of America Endorses Dr. Scott Gottlieb for FDA Commissioner

In a letter to the Chairman and Ranking Member of the United States Senate Committee on Health, Education, Labor and Pensions (HELP), the Sarcoma Foundation of America (SFA) expressed support for the nomination of Scott Gottlieb, MD, for Commissioner of the Food and Drug Administration.  In the letter, the SFA urged for the conformation of Dr. Gotlieb, writing that “Dr. Gottleib has an exemplary track record of supporting and spearheading efforts to ensure that safe and effective treatments are moved through the review process in an expedient manner. During his tenure as the Deputy Commissioner for Medical and Scientific Affairs at…  Read More »

Survey Opportunity for Soft Tissue Sarcoma Patients

Analysis Group, Inc. (AG) is surveying individuals with Soft Tissue Sarcoma to understand their preferences for treatment of soft tissue sarcoma. Your participation will help to advance knowledge in this field.   The Study: AG is seeking individuals with Soft Tissue Sarcoma to share their views and preferences for treatments of soft tissue sarcoma in an online survey lasting approximately 15-20 minutes.   To Participate: You will be eligible to participate if you meet all of the eligibility criteria described below. Your participation is voluntary. You will not be asked to provide personal identifying information in this survey. Your responses…  Read More »

Rare Disease Day 2017

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Two years ago, I wrote a blog post in honor of Rare Disease Day.  Entitled, “Shedding Light on the Forgotten Cancer,” it was a piece meant to raise awareness for a little known disease on a day designed to bring attention to a community of patients that are so often overlooked. It seems appropriate to share that post again as we are near Rare Disease Day 2017. On the last day of February, the rare disease community will collectively join voices and…  Read More »

A Window of Hope

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   There was a long period of time where there seemed to be little to no progress in finding ways to battle the forgotten cancer known as sarcoma. This period of time lasted for decades, though it probably felt more like centuries to the patients and families that were desperately looking for treatment options that never seemed to come. And while sarcoma still takes too many of our loved ones from us, progress in our fight against this terrible disease is finally being…  Read More »

2016 – A Year of Hope and Progress

Dear Sarcoma Foundation of America Supporter, As the calendar takes us into the holiday season, we take the time to reflect on the year that has passed.  In the sarcoma community, 2016 has been a year of hope and progress.  Two new sarcoma drugs have been approved, one drug for Leiomyosarcoma and Liposarcoma patients and another approved broadly for Soft Tissue Sarcoma patients.  These new therapeutic options give us continued hope for better patient outcomes and represent the progress that sarcoma researchers have made over the last decade. The type of hope and progress that the sarcoma community experienced in…  Read More »

SFA Launches Public Service Announcement Campaign

The Sarcoma Foundation of America recently launched a new Public Service Announcement (PSA) campaign. The campaign, named “Sarcoma is Cancer,” is designed to educate a broader audience about sarcoma, introducing many listeners to this rare cancer for the very first time. These PSAs have already begun airing on radio stations across the United States, with more stations slated to run the ads before the end of the year.   Listen to the PSAs: “Sarcoma is Cancer” 60 Second PSA “Sarcoma is Cancer” 30 Second PSA The PSAs are also available at www.curesarcoma.org/sfa-in-the-news/. You can be a part of the effort to raise…  Read More »

Hope Through Advocacy and Policy

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. As I write my last blog for the year, I can’t help but to think about the time of year and what it means for everyone. The Holiday Season is a time of hope and renewal, a time to spend with family and friends, and time to celebrate the special moments and accomplishments of the year. It is also a time to embrace the hope and excitement of the new year. With that said, I’d like to share with you the outcomes of…  Read More »

Take Action: Childhood Cancer STAR Act

  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »