SFA Recent News

Sarcoma Foundation of America to Honor Lilly Oncology for Advancements in the Treatment of Soft Tissue Sarcoma

– Vision of Hope Award to be presented at the SFA’s 15th Annual Fundraising Gala –   DAMASCUS, Md. – April 10, 2017– The Sarcoma Foundation of America (SFA), an organization dedicated to increased research funding and advocacy for sarcoma, is pleased to announce that Lilly Oncology is the 2017 recipient of the Vision of Hope Award.  Lilly Oncology will be honored at the SFA’s 15th Annual New York fundraising gala, “A Celebration of Life.”  The event will take place on April 20, 2017, at Guastavino’s, 409 E 59th Street, New York, NY. The Vision of Hope Award is presented…  Read More »

Sarcoma Foundation of America Endorses Dr. Scott Gottlieb for FDA Commissioner

In a letter to the Chairman and Ranking Member of the United States Senate Committee on Health, Education, Labor and Pensions (HELP), the Sarcoma Foundation of America (SFA) expressed support for the nomination of Scott Gottlieb, MD, for Commissioner of the Food and Drug Administration.  In the letter, the SFA urged for the conformation of Dr. Gotlieb, writing that “Dr. Gottleib has an exemplary track record of supporting and spearheading efforts to ensure that safe and effective treatments are moved through the review process in an expedient manner. During his tenure as the Deputy Commissioner for Medical and Scientific Affairs at…  Read More »

Survey Opportunity for Soft Tissue Sarcoma Patients

Analysis Group, Inc. (AG) is surveying individuals with Soft Tissue Sarcoma to understand their preferences for treatment of soft tissue sarcoma. Your participation will help to advance knowledge in this field.   The Study: AG is seeking individuals with Soft Tissue Sarcoma to share their views and preferences for treatments of soft tissue sarcoma in an online survey lasting approximately 15-20 minutes.   To Participate: You will be eligible to participate if you meet all of the eligibility criteria described below. Your participation is voluntary. You will not be asked to provide personal identifying information in this survey. Your responses…  Read More »

Rare Disease Day 2017

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   Two years ago, I wrote a blog post in honor of Rare Disease Day.  Entitled, “Shedding Light on the Forgotten Cancer,” it was a piece meant to raise awareness for a little known disease on a day designed to bring attention to a community of patients that are so often overlooked. It seems appropriate to share that post again as we are near Rare Disease Day 2017. On the last day of February, the rare disease community will collectively join voices and…  Read More »

A Window of Hope

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America.   There was a long period of time where there seemed to be little to no progress in finding ways to battle the forgotten cancer known as sarcoma. This period of time lasted for decades, though it probably felt more like centuries to the patients and families that were desperately looking for treatment options that never seemed to come. And while sarcoma still takes too many of our loved ones from us, progress in our fight against this terrible disease is finally being…  Read More »

2016 – A Year of Hope and Progress

Dear Sarcoma Foundation of America Supporter, As the calendar takes us into the holiday season, we take the time to reflect on the year that has passed.  In the sarcoma community, 2016 has been a year of hope and progress.  Two new sarcoma drugs have been approved, one drug for Leiomyosarcoma and Liposarcoma patients and another approved broadly for Soft Tissue Sarcoma patients.  These new therapeutic options give us continued hope for better patient outcomes and represent the progress that sarcoma researchers have made over the last decade. The type of hope and progress that the sarcoma community experienced in…  Read More »

Ways to Help Sarcoma Warriors this Year-End

  Thank you to all who have so generously supported the Sarcoma Foundation of America this year!  Your contributions have helped us accomplish so much in 2016. Together, we continue our work toward a cure in our time. Thinking about making a year-end gift?  There’s still time. Check out our Year-End FAQ page where you’ll find information to answer your questions from A to Z.   Looking to spread sarcoma awareness this holiday season? Take a look at the SFA Shop for gifts that support our mission and raise awareness.   Thinking of contributing a non-cash gift such as a…  Read More »

SFA Launches Public Service Announcement Campaign

The Sarcoma Foundation of America recently launched a new Public Service Announcement (PSA) campaign. The campaign, named “Sarcoma is Cancer,” is designed to educate a broader audience about sarcoma, introducing many listeners to this rare cancer for the very first time. These PSAs have already begun airing on radio stations across the United States, with more stations slated to run the ads before the end of the year.   Listen to the PSAs: “Sarcoma is Cancer” 60 Second PSA “Sarcoma is Cancer” 30 Second PSA The PSAs are also available at www.curesarcoma.org/sfa-in-the-news/. You can be a part of the effort to raise…  Read More »

Hope Through Advocacy and Policy

 Today’s post was written by Bert E. Thomas IV, PhD, MBA, CEO of the Sarcoma Foundation of America. As I write my last blog for the year, I can’t help but to think about the time of year and what it means for everyone. The Holiday Season is a time of hope and renewal, a time to spend with family and friends, and time to celebrate the special moments and accomplishments of the year. It is also a time to embrace the hope and excitement of the new year. With that said, I’d like to share with you the outcomes of…  Read More »

Take Action: Childhood Cancer STAR Act

  UPDATE 12/9/2016: Thank you to all of the advocates who reached out to their Senators to urge passage of the STAR Act. Unfortunately, a vote in the Senate will not take place this year. This is not the end, as the effort will begin again in 2017.   UPDATE: On December 6, 2016, the US House of Representatives passed the STAR Act. Now the US Senate must act before they adjourn at the end of this week! We need your help to make this happen. You can take action by: Calling your Senator and asking them to pass the STAR…  Read More »